That, in the opinion of the House, the government should help ensure that patients suffering from Multiple sclerosis (MS), and their families and caregivers, have access to the information they need to make informed decisions in the management of their condition by ensuring that: ( a) the MS monitoring system currently being developed by the Canadian Institute for Health Information contain specific and useful information, accessible directly to patients, on the risks, benefits, and other relevant aspects relative to undergoing surgical treatment for chronic cerebro-spinal venous insufficiency (CCSVI); (b) departments, agencies and programs work closely with provincial and territorial counterparts, with health professionals associations, such as the Royal College of Physicians and Surgeons, and with patient groups, such as the MS Society of Canada, on the sharing of up-to-date research-based information on the nature of CCSVI and its link to MS; and (c) the government’s two advisory boards dealing with MS ensure the patients’ concerns and views are well represented and heard at future meetings.
