Evidence of meeting #123 for Health in the 42nd Parliament, 1st Session. (The original version is on Parliament’s site, as are the minutes.) The winning word was insulin.

A recording is available from Parliament.

On the agenda

MPs speaking

Also speaking

Charlene Lavergne  As an Individual
Stacey Livitski  As an Individual
Karen Kemp  Diabetes Advocate, Diabetes Canada

9:25 a.m.

Karen Kemp Diabetes Advocate, Diabetes Canada

You have my notes, and people have read them.

I'm going at it a bit differently with regard to CGM. It helps me because my blood sugar fluctuates; it's called hypo-unawareness. With type 1 diabetes, your blood sugar can just plummet and go low. You have no signs or symptoms. It's very dangerous. I can be somewhere and not even recognize my husband. You need to have your blood sugar.... It's on my phone because of this transmitter that I wear. It costs me $3,000 a year, and it's not covered by extended medical insurance.

I brought some to show you and to pass around. In order to put this on, you need a needle—like this—to insert that. It has a copper wire that reads your blood sugar, which is a sensor. It has a transmitter attached to it. It's very high tech. In the notes you can see that, at any time, you know what your blood sugar level is. Then you know how much insulin to take and what to eat. It's showing on this that you want to be within the grey line, but it could go down or it could go up. Because I was panicking getting here—I left at seven in the morning from Kanata—my blood sugar went low. I could see on here that it was going down so I just drank a juice. However, if I didn't have this, I wouldn't know that it was low. I could pass out.

Not everyone with type 1 diabetes—that's 10% of the 11 million Canadians with diabetes—needs to wear a CGM. It's the 2.5% or about 275,000 Canadians who have hypo-unawareness. You need to test before you drive. You test when you wake up in the morning. If you don't have this, you set your alarm for 2 a.m. and you test, because you often go low in your sleep. What happens is then an alarm goes off.

It's a great system. It's like magic. Imagine having a diabetic child, and the parents have to keep going in to prick their finger and test because they don't know if their blood sugar is going high or low.

You prick your fingers about 42 times a week, whereas this is one needle a week. That's like 2,000 finger pricks. It hurts. Mine are calloused.

What I'm asking for is to have this covered. The key point is that the CGM system, the continuous glucose monitoring system, can prevent life-threatening emergencies. Also, it can put less financial stress on the family, less burden. It would help people with type 1 diabetes hypo-unawareness have a healthier, confident life, because you don't feel confident if you don't know what your blood sugar is.

Here's the best way I can explain it. What's your blood pressure right now? You don't know. That's what we live with. We live in fear. The reality is that we live in fear. We don't know if our blood sugar levels are high or low. This is perfect because it will show me. When I got here, it had two arrows going down. That was like “Get some juice into you quickly”, right? You like to have it nice and even, but things happen in life. Everything affects your blood sugar. I'm just saying that this would save money in the long term because of all the complications with type 1 diabetes.

You had another person listed to speak today, Michelle Sorenson. Unfortunately she wasn't well. She ended up in the hospital.

I don't know what else I can say. It saves money.

9:30 a.m.

NDP

Robert Aubin NDP Trois-Rivières, QC

Okay.

9:30 a.m.

Diabetes Advocate, Diabetes Canada

Karen Kemp

I also brought an insulin pump to show you. You use this needle to inject the infusion set, and then you attach this cannula. You can see what's in here. There's a cartridge of insulin. If I'm going to eat something, I'll look to see what my blood sugar is. Okay, it's six. I put in my blood sugar level. How many carbs am I going to have? I'm going to have two pieces of toast, so I put in 30 carbs. Then it does the math and figures out how much insulin I need.

It's a fair amount of work, but this has saved my life multiple times. Not every person with diabetes needs this because they have signs and symptoms. The unawareness means that you simply go low and you have no symptoms, such as perspiring, headache, dizziness, mood changes, extreme fatigue or turning pale. You don't have any symptoms. I ran into Costco once to get some flowers and boom—I went low. I would love to have seen that videotape. I was walking around and I didn't expect to go low. I didn't have anything with me. I had my Costco card and my debit card. I needed food, right? They always hand out samples and someone gave me one. I opened it and it was a bar of soap. I was going to eat it, but I smelled it and thought, “Oh, God, I can't eat that.” You're so low your brain is shutting down. You can't ask for help. It's hard for others to imagine. I couldn't find the door because my brain was shutting down. I just kept walking around and around. You can have this right next to you but your brain has shut down and you don't even know you need to drink it. I finally found the way out, but I didn't know where my car was. Luckily a beep, beep did this. My car was full of food and juice and all sorts of things. I finally found it. I sat there, drank three juice boxes, ate some food and I was okay. You live like this.

9:35 a.m.

Liberal

The Chair Liberal Bill Casey

I have to go to our next questioner now.

9:35 a.m.

Diabetes Advocate, Diabetes Canada

Karen Kemp

Sorry. Yes.

9:35 a.m.

Liberal

The Chair Liberal Bill Casey

Dr. Eyolfson, you have seven minutes.

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Thank you, Mr. Chair.

I thank all of you for coming.

Ms. Lavergne, I was distressed in particular to hear of your interactions with the medical profession. I have been a physician for 20 years. On behalf of my profession, I'm sorry. Certainly your experience goes against everything we were taught in medical school. However, I'm not surprised to hear that account. That in itself is also unfortunate.

We were talking about the costs of things. Did you just say that your insulin costs $1,000 a month?

9:35 a.m.

As an Individual

Charlene Lavergne

That's all of the meds.

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

That's all of the meds. Okay.

9:35 a.m.

As an Individual

Charlene Lavergne

Just the insulin is $800.

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Just the insulin is $800. Okay.

How long ago were you diagnosed with diabetes? When did you first have insulin?

9:35 a.m.

As an Individual

Charlene Lavergne

I was on and off insulin during pregnancies and infections. I was on and off insulin for 40 years, but I've been on it full time for about 25 years.

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Do you recall, when you started on full-time insulin 25 years ago, how much you were spending on it per month?

9:35 a.m.

As an Individual

Charlene Lavergne

Well, I'll give you an idea. Up until last year, I was still using a syringe and a vial. I was mixing my own insulin because I'm good at it and nobody else knew how to do it. It was $26 for a vial a year and a half ago, and for the cartridges, it was $133 for 10 days' supply. The first vial I remember using was $5. So it's come a long way. It's very pricey now.

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

The price is going up quite substantially.

November 20th, 2018 / 9:35 a.m.

As an Individual

Charlene Lavergne

I can remember from last June to this June, it started at $18 for a vial and within six months it went up to $28.

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Is it the same form of insulin you've been taking the whole time or have they changed it? Is one of these a newer form?

9:35 a.m.

As an Individual

Charlene Lavergne

No, up until a year ago, it was just the old stuff, good old NovoRapid and....

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

These price increases were not with any new insulin. Was it just going up?

9:35 a.m.

As an Individual

Charlene Lavergne

Whenever you went to the pharmacy, you said, “Please God, please God, I've got so much in my purse.”

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

I've been asking that, because it's been a common theme in these discussions and other discussions, and certainly in our discussions on pharmacare. This drug is a century old.

9:35 a.m.

As an Individual

Charlene Lavergne

NovoRapid has been around.

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

The person who discovered it did not make any money off of it. He gave it to the world for free and this is happening. This is one of the things we realize that is broken in our system.

9:35 a.m.

As an Individual

Charlene Lavergne

The stuff I'm on now is really expensive. I'm on Tresiba and Fiasp, and they are really pricey.

9:35 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Ms. Livitski, you talked about the insulin pump you're on. How much does that cost? What's the upfront cost, and what do you pay per month for it?