Evidence of meeting #123 for Health in the 42nd Parliament, 1st Session. (The original version is on Parliament’s site, as are the minutes.) The winning word was insulin.

A recording is available from Parliament.

On the agenda

MPs speaking

Also speaking

Charlene Lavergne  As an Individual
Stacey Livitski  As an Individual
Karen Kemp  Diabetes Advocate, Diabetes Canada

9:35 a.m.

As an Individual

Stacey Livitski

I'm lucky because I live in Ontario. I get funding through the assistive devices program, but it doesn't cover everything.

I can't use that same Inset that Karen showed you. That's a little bit cheaper than what I have to use. I do pay more. I do not track it, because just like tracking my time, that's taking more away from me, and it would really make me [Inaudible—Editor] fast.

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Did anyone give you an idea of what that cost would be for someone who had no coverage at all?

9:40 a.m.

As an Individual

Stacey Livitski

The pump is what, six—

9:40 a.m.

Diabetes Advocate, Diabetes Canada

Karen Kemp

Well, no. You have to qualify for an insulin pump through the government, and then the assistive devices program. A pump is $7,000.

9:40 a.m.

As an Individual

Stacey Livitski

It wasn't an option until that program became available in Ontario. In 1997, my doctor told me I really needed to be on an insulin pump, but I had no coverage. That was when I was with my ex-husband, and I had no access. It was unattainable.

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

You said that it's an employer plan through your husband that is paying, but you're paying a 20% co-pay, is that right?

9:40 a.m.

As an Individual

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Is that new? Has that gone up or has it always been that way since you've been on that plan?

9:40 a.m.

As an Individual

Stacey Livitski

He's just switched jobs, so he's only been where he is for a year. The job he has now has a much better plan and coverage.

That's the thing. Employers don't necessarily know what their employees need. Plans are tailored not knowing the needs of the plan members. That's an issue in itself. It's a pick and choose kind of menu plan.

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

I'll ask everybody this question.

Have you ever applied for any private insurance or through an employer? Have there ever been difficulties due to the pre-existing conditions clauses?

9:40 a.m.

As an Individual

Stacey Livitski

I tried right out of college and was denied right off the bat. Even with my husband's insurance, I actually was denied for life insurance despite my below average A1C. I am doing everything in my power—

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

I meant an insurance plan for covering medications. Were you excluded from those?

9:40 a.m.

As an Individual

Stacey Livitski

When I got out of college, so everything.

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Were you excluded from everything?

9:40 a.m.

As an Individual

Stacey Livitski

Pretty much. Anything you wanted to get, “Oh, no, you have type 1 diabetes. No, sorry, we're not going to touch that.”

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Are you saying people should apply for work insurance at the age of five just in case they're diagnosed with diabetes after that?

9:40 a.m.

As an Individual

Stacey Livitski

Essentially.

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

Ms. Lavergne, would you say you've had similar experiences with the private insurance industry?

9:40 a.m.

Diabetes Advocate, Diabetes Canada

Karen Kemp

Currently, my husband has insurance with Great-West Life. We've been asking GWL, because the government insurance has coverage for CGM, if it would cover CGM, and it is just not answering. We keep trying by sending letters and it is not going to cover it.

9:40 a.m.

As an Individual

Stacey Livitski

I don't think insurance companies understand a lot of the technology either.

I heard of people who made a request for coverage, and they were told that the CGM would be covered. Then, when they put that in, they were denied because they lived in Ontario and the company confused this part, with this, and said, “Oh, no, you have coverage already, and we're not paying for it.” They're two totally separate things that do totally different functions, but we need them both equally.

9:40 a.m.

As an Individual

Charlene Lavergne

You have to remember that I take more insulin than they do. I take three times more insulin than they do, and I get nothing. Nothing is covered for me. I don't exist.

9:40 a.m.

Liberal

The Chair Liberal Bill Casey

The time's up.

9:40 a.m.

Liberal

Doug Eyolfson Liberal Charleswood—St. James—Assiniboia—Headingley, MB

I think that's my time. Thank you very much.

9:40 a.m.

Liberal

The Chair Liberal Bill Casey

We now go to our five-minute round.

I believe we start with Ms. Gladu.

9:40 a.m.

Conservative

Marilyn Gladu Conservative Sarnia—Lambton, ON

Indeed, thank you, Chair.

One of the Conservative members, Tom Kmiec, has brought forward a private member's bill, Bill C-399, the fairness for persons with disabilities act. It tries to make sure that everyone who has diabetes and is, as you say, worrying and calculating and taking all these actions 24-7 has access to the disability tax credit, which then also gives them access to the pension that's related to it to try to help when they turn 65 to pay for all of these medications and things going forward. I think that's a good idea, but my concern is that today, even with the disability tax credit, 40% of the people who should qualify aren't able to get it.

Ms. Kemp, you weren't here when we had this discussion. Do you get the disability tax credit?