Status of Women committee  The issues are home support and the need for respite.

Status of Women committee  It's terrible that a mother—we're talking about a mother because it's mothers in 98% or 99% of cases—who takes care of her child for 24 hours a day has only four hours a week of home support. That's unacceptable.

Status of Women committee  Yes, of course. Labelling issues, expiry dates, and all those things are very important to us as parents. Our child has to consume a certain number of calories. Everything is weighed and calculated, so I can understand the concerns of that mother.

Status of Women committee  We have received compensation. We reached out to the Quebec government to point out that host families received about $15,000 in respite services. Various costs are reimbursed to those families, including the cost of medications and ambulance fees. We have calculated all of that

Status of Women committee  That is correct. As a family, we receive $4,000 from all programs and services.

Status of Women committee  Yes, $4,000. So our salary was increased by $4,000. That includes federal financial assistance. Quebec provided $2,000 and Canada provided the same amount.

Status of Women committee  Yes, per year. So we told the Quebec government that something had to be done. We were successful and obtained equal treatment, or at least something approaching equality, which we are pleased with. We got $957 per month tax free. As we said, this is because of the child's comple

Status of Women committee  Yes. Unfortunately, in the case of a child whose condition is borderline, who is not considered to be sufficiently disabled, the request is refused and the family will continue to receive just $2,000 per year. There are still shortcomings, but we are working to resolve those as

Status of Women committee  Let me give you a few figures about our personal situation, which is similar to that of others here. My spouse and I both used to work and each earned a salary. Since I no longer work, our income has plummeted. Moreover, our child's needs, which entail certain costs, have increa

Status of Women committee  This assistance is greatly appreciated and is necessary to meet our children's many needs: their specialized therapy, expensive uninsured medications, ambulance fees, and fees related to hospitalization, such as parking and food. At the same time, however, we as Canadian women a

Status of Women committee  To give you an idea of what our lives are like, here is a typical day. We often wake up during the night to make sure that our child is breathing properly, has not pulled at their feeding tube, to reposition their oxygen tube or to restart the feeding tube. Also, we often have