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Health committee Repurposing, which is what it's called, is pretty exciting. Again, when you think about diseases that have shared mechanisms, it's good. We must be cautious, though. The well is not that rich in medicines. We have medicines to very few pathways. Those that happen to work will be
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee I'm the CEO of an organization with labs in Stockholm, Germany, England, America, Brazil and Canada. The system of science is the same around the world. Frankly, it is rather open. We publish. That's how we get our credibility, by publishing. When we're speaking about product dev
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee We don't represent the sector that was muzzled, but my understanding is.... Does anyone on the line know more than I do about the policies internal to the ministry of the environment, etc.? No? We would have to ask the ministries. The folks that I know in there are happier, so
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee There's a lot of evidence that sharing locally creates ecosystems that can more quickly uptake the research. There is a lot of local economic benefit from projects that share locally, because the best intellectual property walks on two feet, so the scientists can walk back and fo
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee I suspect the bigger experts are sitting here in Hamilton. If I might reiterate, the model we're proposing as researchers is to make a better world in the future, where the medicines we invent now will be affordable. You're saying that the medicines now are very expensive and ask
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee I'll take this one. You need to remember that other scientists, like the ones around the table here, work at universities, and we're “unmuzzleable”, as it were. However, regarding the scientists that work in the government labs, my understanding was that they were told to keep o
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee You're too young to remember the days before this shareholder optimization stuff that Harvard Business School put out in the eighties, right? A company used to be described as the community, the employees, the company and the shareholders, all of equal value. With the shareholder
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee I'll let my attorney take care of this one.
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee There are obviously lots of studies about this. When universities started to own their intellectual property, it was driven by the American government when they passed the Bayh-Dole Act in the early eighties. That created that idea that it's too complicated for governments to man
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee On the pharmaceutical sector, if you think of the corporate structure, the CEO has sales and marketing divisions that have CEOs in every country, and they have global research and development that invents the new medicines. There used to be some global research and development si
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee But it's also not true. They're allowed to patent the results and keep things secret; it's the publication that has to be in the public domain. The background intellectual property can be.... We have a story on one of the universities in England. For 18 months, we have not been
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee Okay. The Alzheimer's example is a great one. The beta amyloid hypothesis has been tested by about 10 companies. Probably about $20 billion has gone into that hypothesis. All the companies did it in secret. We're still no wiser as to whether that hypothesis is true or not for Al
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee If I understood correctly, one of the problems is that for most rare diseases there are no medicines at all. When you're talking about unaffordable medicines that parents are trying to get, that's what we're trying to fix. There's the problem of today, which as you say is how p
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee I don't know how the treatment of these patients...but presumably, when we have friends like Kym Boycott at CHEO, they know all the network of folks. It's a very close community and it's close to these rare disease researchers. When it's not available in Canada, our regulators ar
October 16th, 2018Committee meeting
Dr. Aled Edwards
Health committee I prefer not to answer it that way. It's a business. I have investors. In my job, I don't agree with any of this. I run a charity, but when I was doing that, I had to make money for the investors, or the guys who ran the company had to make money, and that was the best deal on
October 16th, 2018Committee meeting
Dr. Aled Edwards