Health committee  I'm from Neurological Health Charities Canada, so I'm representing a number of organizations. Within our organizations, that type of direct service work absolutely happens. It's not a rare condition, but an example I could give is the Alzheimer Society. If you're an adult diagn

Health committee  That's a very good question. The way we see it, it's about privacy, and it's about protection. Because we have identified those two major issues, being employability and insurability, and to my knowledge we haven't seen it play out in other major aspects of a person's life, I th

Health committee  That is something we're starting to look into more now that we are coming to a point where we're wrapping up the study and we're beginning to look at what the next steps are and broaden our horizons. Before joining Neurological Health Charities Canada I was with the Alzheimer S

Health committee  Sorry, I'm just thinking about my answer.

Health committee  You just speak.

Health committee  You're right in that we're seeing a lot of condition-specific global partnerships. I think with the development of NHCC, and with these various neurological conditions coming together, it's made us realize, even more so, and now that we're about four years in, that the commonalit

Health committee  That's a very good question, and I don't think I have the knowledge to answer it. I apologize. I'd be more than happy to get an answer to that question for you.

Health committee  I'll let Dr. Innes answer that.

Health committee  Are you wondering when a person could begin to use it?

Health committee  The earliest example I've come across, which I included in the brief, is at three years. There isn't a vast amount of information out there on this technology at this point, but three years old was the earliest. There are other types of diseases, dystonia would be another example

Health committee  If I may, I'll start with the second question first, the one about genetic discrimination. One of the most common examples of genetic discrimination would be Huntington's disease. If your parent has it, there's a 50-50 chance that you will too. Everyone has to fill out an insur

Health committee  Thank you for inviting Neurological Health Charities Canada to testify in front of the committee once again. It has been our pleasure to stand before this committee in the past to testify on behalf of the estimated 5.5 million Canadians living with neurological conditions in Cana