It doesn't speak directly to the transition experience, but in 2008 a research team at the University of Alberta did a study on the challenges facing families of high-pension disability recipients. They found a number of challenges around the care-giving experience and around the emotional experience as well of providing care for somebody over a long period of time.
So that study was conducted. It doesn't speak to transition as well, but I imagine that transition might even add to those burdens.