National Strategy for Sickle Cell Disease and Thalassemic Disorders Act

An Act respecting a Comprehensive National Strategy for Sickle Cell Disease and Thalassemic Disorders

This bill was last introduced in the 41st Parliament, 2nd Session, which ended in August 2015.

This bill was previously introduced in the 41st Parliament, 1st Session.

Sponsor

Kirsty Duncan  Liberal

Introduced as a private member’s bill. (These don’t often become law.)

Status

Outside the Order of Precedence (a private member's bill that hasn't yet won the draw that determines which private member's bills can be debated), as of June 15, 2011
(This bill did not become law.)

Summary

This is from the published bill. The Library of Parliament often publishes better independent summaries.

This enactment requires the Minister of Health to initiate discussions with the provincial and territorial ministers responsible for health for the purpose of developing a comprehensive national strategy for the health care of persons afflicted with sickle cell disease and thalassemic disorders.

Elsewhere

All sorts of information on this bill is available at LEGISinfo, an excellent resource from the Library of Parliament. You can also read the full text of the bill.

Sickle Cell DiseasePetitionsRoutine Proceedings

January 29th, 2015 / 10:05 a.m.
See context

Liberal

Kirsty Duncan Liberal Etobicoke North, ON

Mr. Speaker, I have a petition to present to the House today regarding sickle cell disease. Red blood cells harden into long slivers that block veins and arteries, causing injuries to the blood vessels of organs, including the brain and lungs. About 10% of children develop strokes. Children with sickle cell disease are also extremely vulnerable to infection and have periodic health crises that cause terrible pain and difficulty breathing.

The petitioners call upon the House of Commons to adopt Bill C-221.

HealthPetitionsRoutine Proceedings

December 10th, 2014 / 4:15 p.m.
See context

Liberal

Kirsty Duncan Liberal Etobicoke North, ON

Mr. Speaker, I have a petition regarding sickle cell disease and thalassemic disorders. In sickle cell disease, red blood cells harden into long slivers that block veins and arteries, causing injuries to the blood vessels of organs, including the brain and lungs. About 10% of children develop strokes. Children with sickle cell disease are also extremely vulnerable to infection and have periodic health crises that cause terrible pain and difficulty breathing.

The petitioners call upon the House of Commons to adopt Bill C-221.

HealthPetitionsRoutine Proceedings

May 3rd, 2012 / 10:05 a.m.
See context

Liberal

Kirsty Duncan Liberal Etobicoke North, ON

Mr. Speaker, I am pleased to present this petition regarding sickle cell disease and thalassemic disorders.

Sickle cell disease affects blood cells that carry oxygen throughout our bodies. In sickle cell disease, red blood cells harden into long slivers that block veins and arteries causing injury to blood vessels of organs, including the brain and lungs. About 10% of children develop strokes. Children with sickle cell also are extremely vulnerable to infection and have periodic health crises that cause terrible pain and difficulty breathing, and their lifespan can be reduced by about 30 years.

The petitioners are calling upon the House of Commons to adopt Bill C-221, An Act respecting a Comprehensive National Strategy for Sickle Cell Disease and Thalassemic Disorders.

Sickle Cell DiseasePetitionsRoutine Proceedings

February 7th, 2012 / 10:05 a.m.
See context

Liberal

Kirsty Duncan Liberal Etobicoke North, ON

Madam Speaker, I am pleased to present this petition regarding sickle cell disease and thalassemic disorders.

Sickle cell disease affects blood cells which carry oxygen throughout our bodies. In sickle cell disease, red blood cells harden into long slivers that block veins and arteries causing injury to blood vessels of organs, including the brain and lungs. About 10% of children develop strokes. Children with sickle cell are also extremely vulnerable to infection and have periodic health crises that cause terrible pain and difficulty breathing. The lifespan of persons with sickle cell disease can be reduced by as much as 30 years.

The petitioners call upon the House of Commons to adopt Bill C-221, An Act respecting a Comprehensive National Strategy for Sickle Cell Disease and Thalassemic Disorders.

Sickle Cell DiseasePetitionsRoutine Proceedings

September 28th, 2011 / 3:25 p.m.
See context

Liberal

Kirsty Duncan Liberal Etobicoke North, ON

Mr. Speaker, I am pleased to present this petition regarding sickle cell disease and thalassemic disorders.

Sickle cell disease affects blood cells, which carry oxygen throughout our bodies. In sickle cell disease, red blood cells harden into long slivers that block veins and arteries, causing injury to blood vessels of organs, including the brain and the lungs. About 10% of children develop strokes. Children with sickle cell are also extremely vulnerable to infection and have periodic health crises that cause terrible pain and difficulty in breathing. The lifespan of persons with sickle cell disease can be reduced by as much as 30 years.

The petitioners call upon the House of Commons to adopt Bill C-221, An Act respecting a Comprehensive National Strategy for Sickle Cell Disease and Thalassemic Disorders.

World Sickle Cell Awareness DayStatements by Members

June 20th, 2011 / 2:10 p.m.
See context

Liberal

Kirsty Duncan Liberal Etobicoke North, ON

Mr. Speaker, yesterday was World Sickle Cell Awareness Day, a day to spread the word about a disease known to the western world for 100 years and to recognize and celebrate the courage of those living with sickle cell, a genetic blood disorder.

Sickle cell disease affects blood cells which carry oxygen throughout our bodies. In Sickle cell disease, red blood cells harden into long slivers that block veins and arteries, causing injury to blood vessels of organs, including the brain and lung. About 10% of children develop strokes. Children with sickle cell are also extremely vulnerable to infection and have periodic health crises that cause terrible pain and difficulty breathing.

Last week I tabled Bill C-221, An Act respecting a Comprehensive National Strategy for Sickle Cell Disease and Thalassemic Disorders. I hope all hon. members will educate themselves on this devastating disease and support families who cope with it.

National Strategy for Sickle Cell Disease and Thalassemic Disorders ActRoutine Proceedings

June 15th, 2011 / 3:20 p.m.
See context

Liberal

Kirsty Duncan Liberal Etobicoke North, ON

moved for leave to introduce Bill C-221, An Act respecting a Comprehensive National Strategy for Sickle Cell Disease and Thalassemic Disorders.

Mr. Speaker, my bill , a national strategy for sickle cell disease and thalassemic disorders, addresses the challenges faced by children and adults living with these inherited blood disorders.

The bill calls on the Minister of Health to initiate discussions with the provincial and territorial health ministers to develop comprehensive patient care throughout the life cycle, develop national standards regarding universal screening, develop centres of excellence for both pediatric care and adult care, assess best practises for patients to succeed at school and in the work place, develop information for medical education to prepare health care workers to meet the needs of Canada's diverse populations, develop adequate clinical guidelines and prompt pain management for patients in crisis, establish a program of funding to advocacy groups, and recognize June 19 as sickle cell anemia awareness day in Canada.

I hope all hon. members will support the bill.

(Motions deemed adopted, bill read the first time and printed)