An Act to amend the Canada Revenue Agency Act (organ donors)

This bill was last introduced in the 42nd Parliament, 1st Session, which ended in September 2019.

Sponsor

Len Webber  Conservative

Introduced as a private member’s bill. (These don’t often become law.)

Status

Second reading (Senate), as of May 2, 2019
(This bill did not become law.)

Summary

This is from the published bill. The Library of Parliament often publishes better independent summaries.

This enactment amends the Canada Revenue Agency Act to authorize the Canada Revenue Agency to enter into an agreement with a province or a territory regarding the collection and disclosure of information required for establishing or maintaining an organ and tissue donor registry in the province or territory.

Elsewhere

All sorts of information on this bill is available at LEGISinfo, an excellent resource from the Library of Parliament. You can also read the full text of the bill.

Votes

Nov. 7, 2018 Passed 2nd reading of Bill C-316, An Act to amend the Canada Revenue Agency Act (organ donors)

Criminal CodePrivate Members' Business

November 20th, 2018 / 7 p.m.
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NDP

Murray Rankin NDP Victoria, BC

Mr. Speaker, I am very honoured to rise to debate this matter. I am pleased as well to second this bill, brought to us by the hon. member for Sherwood Park—Fort Saskatchewan. It is the work of Senator Ataullahjan from the other place, the Senate, that led us here. I understand the bill passed with enormous support in the other place and I am hoping that it will have the same level of support here in this place.

Canada is a bit behind the times on this. I note, for example, that the Europeans have for quite some time had a convention entitled “Council of Europe Convention against Trafficking in Human Organs". The hon. member has already set out the cross-party support an initiative like that has had in this place for very many years, and it seems to me that the time has come to join the Europeans and other countries to deal with the scourge of trafficking in human organs this bill seeks to address.

I note that the bill “amends the Criminal Code to create new offences in relation to trafficking in human organs [and tissue]. It also amends the Immigration and Refugee Protection Act to provide that a permanent resident or foreign national is inadmissible to Canada if the Minister of Citizenship and Immigration is of the opinion that they have engaged in any activities relating to trafficking in human organs [or tissue].”

The hon. parliamentary secretary pointed out quite properly the difficulty sometimes of going after people in other jurisdictions. Of course, that has not stopped Canada dealing with sex trafficking, as has been pointed out, or “sex tourism” as it is called. We know that is the case. Also there is a section in Bill S-240 that would require any proceedings to be instituted only with the consent of the Attorney General, therefore making it likely that we could address these practical problems, to which he made reference, through that intermediary.

The scourge of organ trafficking is absolutely appalling and its exponential growth should cause concern for every member of this place. In her speech, the senator referred to situations that sound like horror movies. She cited the following:

Waking up in a weary haze in an unfamiliar house on the outskirts of Delhi, India, Khan was greeted by a stranger in a surgical mask and gloves. As he began to ask where he was and what had happened, he was told very curtly, “Your kidney has been removed.”

As another exposé published in the Haaretz newspaper indicates, thousands of Sudanese refugees living in Cairo have fallen victim to the illegal organ trade. These people are among the most desperate and easy prey for people who can simply push them aside, often by putting a mask with anaesthesia over their mouths, taking them to the back of a private clinic and removing organs, the most popular being kidneys, livers and others, and then sending them home after a while, still drugged, maybe unconscious, without the organ in question. Last year Professor Seán Columb of the University of Liverpool published a study showing a connection between the organ-harvesting industry and the societal exclusion of minorities and refugee groups in Cairo.

This is a huge problem. It has grown exponentially according to the experts, in part, as the parliamentary secretary pointed out, due to the fact that the demand has grown and the supply has become limited.

I feel that some practical steps have been taken recently in this place. The member for Calgary Confederation has introduced in the House Bill C-316, which would deal with information from tax records being used for an organ donor registry. That is another initiative I was proud to second and support. As the population ages, the demand will likely increase and these crimes by organized criminals will increase as well.

I do not want to spend much time on this bill. To me, it is a quintessential no-brainer. I want to join the Europeans. I want to join others around the world who are recognizing the scourge of organ trafficking and, as a Canadian, stand proudly with them and deal with this very real problem.

As my friend said earlier, we do not have a problem if we can come together, as other jurisdictions have, and say let us get this done in this Parliament to make a difference in people's lives right now.

November 20th, 2018 / 8:45 a.m.
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Liberal

The Chair Liberal Bill Casey

I call the meeting to order. We're still waiting for our guests. Apparently they're going through security right now.

We do have a bit of committee business. We have to confirm that the deadline for amendments is Thursday, November 22, for Bill C-316, Mr. Webber's bill. I want to make sure everyone knows that Thursday at 4 p.m. is the deadline for amendments.

Mr. Webber, I went to see if I could find you yesterday, but I missed you. Have you been talking to any officials about amendments?

Organ and Tissue DonationPrivate Members' Business

November 19th, 2018 / 6:45 p.m.
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Conservative

Garnett Genuis Conservative Sherwood Park—Fort Saskatchewan, AB

Mr. Speaker, it is a pleasure for me to rise today to discuss another initiative dealing with the issue of human organs and organ transplantation. By my count, there are five initiatives that have been or are before us that deal in some sense with the issue of organ transplantation. There were private members' bills put forward by my colleagues from Edmonton Manning and Calgary Confederation; we have the motion before us tonight; and we also have a number of legislative initiatives, one of which I have sponsored and which deals with the issue of illicit organ harvesting. That is, organs taken without consent, which is obviously a very different issue but is one that might be worth reflecting on in the context of some of the discussion that is happening tonight.

What we are debating tonight is Motion No. 189, which says:

That the House: (a) reiterate its commitment to facilitate collaboration on an organ and tissue donation and transplantation system that gives Canadians timely and effective access to care, since every year more than 250 people, out of the 4,500 on waiting lists, die without receiving a transplant; and (b) urge the government to support national efforts with provincial and territorial authorities and stakeholders to increase organ and tissue donation rates in Canada through public education and awareness campaigns, ongoing communication and the exchange of information, including best practices.

It is important to underline that when we debate a motion, it is essentially the House of Commons participating in a communications exercise. That is, we are all together, expressing a sentiment through endorsing an idea. In plenty of cases and in this case, it is a thing worth doing, given the motion is before us. I am going to be voting in favour of this motion.

However, I will also challenge members that the primary objective that we should pursue, as legislators, is not just to look for opportunities to put forward communication pieces on vital issues like this, but to actually look for opportunities to change the law in ways that actively increase the rate of organ donation and also that compel the government to take specific action to move these things forward. If a motion is a way of starting a conversation, that can be very worthwhile, but if a motion is a substitute for legislative action then it is perhaps not desirable. What we need to be doing is looking for opportunities, as legislators, to legislate to take the vital steps that need to be taken now to move this issue forward. I certainly commend the mover of this. I am, again, pleased to support this motion. However, there is such an urgency when it comes to moving forward and addressing, as the motion says, the number of people on waiting lists who die without transplants, that legislative changes are urgently required.

I was pleased to speak in favour of and support a bill by my colleague, a concrete legislative initiative by the member for Edmonton Manning, that would have created a national organ donation registry. Unfortunately, this bill was voted down. It was one of the first private members' bills that was put forward in this Parliament and it was defeated. A national system of national collaboration, which is indirectly hinted at by this motion, would have made the concrete difference. It would have taken far more steps in the right direction than this motion does tonight. It is with regret that I note the defeat of that bill because, had it passed, it would be saving lives today as we speak.

We had another bill put forward, by my colleague from Calgary Confederation, and this added the very helpful step of saying that when persons fill out their income tax forms they should be able to indicate on there whether they wish to be an organ donor, so it would be another opportunity for people to give information and hopefully this would increase the number of people who are saying they would like to be an organ donor. Again, it is a legislative initiative concretely moving things forward, compelling the government to action instead of simply participating in a communications exercise.

These were both good bills. I was pleased to see Bill C-316 pass.

In light of where we are in the electoral cycle and that we are likely less than a year until the next election, members should be seized with the urgency of moving forward good private members' bills that are currently before committee.

Bill C-316 passed the House at second reading. From what I understand of the process, it will need to complete the committee study, complete third reading and make its way through the Senate. There is an urgency to moving that bill forward. If all we do in this Parliament is pass this motion but not pass legislative action, that will have been a failure, a missed opportunity. I hope we will all be able to work together on that legislative initiative.

I would note the mindset and strategy behind Bill C-316. I am reading a fairly well-known book called Nudge by two behavioural economists, Thaler and Sunstein. It talks about this idea of something called libertarian paternalism, which is that governments, businesses, institutions that are shaping the architecture within which people can make choices can preserve complete liberty for the individual while still aligning the circumstances of that choice to try and bring about a socially desirable outcome.

In the case of organ donation, many people likely do not sign their donor cards not because they are choosing not to be an organ donor, but because it is simply that they are not confronted with a situation where they have to make a choice either way. They might be willing to be an organ donor, but they are just not thinking of it, and then something happens to them and they have never gotten around to signing their donor card. The idea of thinking about the choice architecture is to create the conditions in which people still have complete liberty to decide where their organs are going, but the circumstances increase the chances that they will make a choice that is in a broader sense socially desirable.

In the case of Bill C-316, it is about putting people in situations where regularly they are seeing the choice option in front of them, a way of nudging people toward making the choice one way or the other. If someone does not want to be an organ donor, absolutely the individual should have that freedom. However, it is useful for the person to be given that choice in as many contexts as possible so he or she at least is given the greatest opportunity to say yes or no. Hopefully, the individual would say yes so that again we do not have people who are not organ donors even if they thought about it they would be willing to be an organ donor, but they just never got around to signing the card or having that question in front of them.

In the context of discussion about organ donation, I want to talk briefly about Bill C-350 and Bill S-240. Tomorrow night we are going to be debating Bill S-240, which is from the Senate. It would make it a criminal offence for someone to go abroad to receive an organ for which there has not been consent. This is such an important and obvious bill. There are countries, one country in particular, where organs are taken from people without consent, often because the people are seen as politically undesirable by the government.

Anecdotally, Canadians have a sense that some people in other countries will travel to receive an organ that was taken without consent. That should be a criminal offence because being complicit in this terrible practice of organ harvesting is wrong and Canada should do everything it can to try to stop that practice. We should note in that context as well that people who are in that situation face a level of desperation because they know they need an organ and they are on a wait-list. One thing we can do is address that act specifically and address the fact that some people might go abroad to receive an organ that was harvested without someone's consent. At the same time, we can work to increase the level of organ donation here in Canada so that people no longer find themselves in that desperate situation. We can and we should do both.

By passing legislation like Bill C-316, we can ensure that people do not have to be in the desperate situation where they are on a wait-list and even where they may make a choice that they would not make under other circumstances that ends up harming someone else's life in another part of the world. With that in mind, I am very hopeful that we will be able to move forward quickly on the legislative initiative in Bill C-316 as well as Bill S-240 which we will be debating tomorrow.

I am pleased to support this motion, but the House must do more to make the vision behind this issue a reality.

Organ and Tissue DonationPrivate Members' Business

November 19th, 2018 / 6:15 p.m.
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Conservative

Harold Albrecht Conservative Kitchener—Conestoga, ON

Mr. Speaker, I am honoured to rise and speak in support of Motion No. 189. It is a rare opportunity for me to say I agree with the member for Winnipeg North but this is a wonderful opportunity to do that.

Often we in the House find ourselves debating different issues that have great symbolic importance, financial importance or importance in regards to the safety of Canadians. However, when we talk about organ donation and its importance, this is literally a matter of life and death.

Over the past 12 years, I have been proud to support several motions, bills and studies that encourage Canadians to become organ donors. Specifically, during this Parliament, I think of Bill C-223, introduced by my hon. colleague from Edmonton Manning and Bill C-316, introduced by my hon. colleague from Calgary Confederation.

This is not, or at least it should not be, a partisan issue. However, I was dismayed to see the Liberal Party vote against Bill C-223, that I just referenced. This legislation would have established a Canadian organ donor registry and co-ordinated and promoted organ donation throughout Canada. I believe it was a good piece of legislation that unfortunately failed. At the very least, Bill C-223 should have been referred to the Standing Committee on Health for further study in order to receive input from expert witnesses.

Bill C-316, currently being studied by the Standing Committee on Health, was introduced by my colleague from Calgary Confederation. It would give Canadians the opportunity to sign up as organ donors on their annual income tax return. I hope that my colleagues on all sides of the House and in the other chamber will continue to support this common-sense measure that would give Canadians more opportunities to register as an organ donor and in the process save the lives of thousands of Canadians who are on a waiting list. Because time is of the essence, I hope that the Standing Committee on Health and the Senate will quickly move this legislation forward so it is actually in law before the end of this parliamentary term.

The motion today is as follows:

That the House: (a) reiterate its commitment to facilitate collaboration on an organ and tissue donation and transplantation system that gives Canadians timely and effective access to care, since every year more than 250 people, out of the 4,500 on waiting lists, die without receiving a transplant; and (b) urge the government to support national efforts with provincial and territorial authorities and stakeholders to increase organ and tissue donation rates in Canada through public education and awareness campaigns, ongoing communication and the exchange of information, including best practices.

It is a sad truth that while 90% of Canadians support organ donation, only 20% are registered. I am proud to say that the towns of New Hamburg and Baden in my riding of Kitchener-Conestoga have reached a level of 52% registration. They are tied for fifth place out of 170 communities, while New Dundee and Petersburg, also in my riding, are tied for eighth at 49%. Congratulations and many thanks to these four very engaged communities.

We need to do more as members of Parliament to encourage our constituents and all Canadians to register to become organ donors.

I am thankful that the Standing Committee on Health has recently completed a study on organ donation in Canada. I am proud of my Conservative colleagues on that committee who initiated this study. Members of our caucus are awaiting its final report.

In addition to registering as a donor, it is important for individuals to discuss their decision to register with their families. They should let their families know about their decision and then register at beadonor.ca because in the final analysis, families of the deceased are not obligated to follow through but are much more likely to follow through if the discussion occurred beforehand. This decision could very well save a life and offer hope to someone waiting for an organ transplant.

Thousands of adults and children are counting on us and our fellow Canadians to give the gift of life. It is time that we as a nation close the gap between the need for life-saving and life-enhancing organs and the supply of organs that are available. Why not take steps now to make a difference? It will be someone's son, someone's daughter, someone's granddaughter who will be the recipient of someone's good decision to register to donate his or her organs.

We would all like to think we will live to be 80 or 100, but the reality is many of us will die long before that for a variety of reasons.

I came face to face with that reality seven and a half years ago, when my wife of nearly 40 years experienced a sudden intracranial hemorrhage on election night, May 2, 2011. Suddenly unconscious, rushed for medical treatment, surgery and life support, it became apparent that the bleeding could not be stopped, brain activity had totally ceased and death was imminent.

Conferring with my children, knowing Betty's wishes, that she had signed her licence to confirm her intentions to donate her organs, the decision, while not easy, was the right one, as we know that five people have had their lives extended and many more have benefited from the tissues donated.

Seven years ago, I stood in the chamber during a take-note debate about organ donation, just seven months following Betty's death, and I said these words:

I will return for a moment to that hospital. It was clear that Betty's physical life was over. Brain activity had stopped completely. We knew instinctively that the Betty we had come to know and love was no longer there. Her spirit was still very much alive but her body was only breathing with mechanical help. What to do?

Again, our faith has its foundation in the Christian scriptures, which uses many different metaphors for the physical body. It is referred to as a tent, a house, a temple, or even as clothing for the spirit within. So if the person who lived in that temple or...[who] occupied that house or camped in that tent was no longer here to need any of those things, why would we not share them with someone in need?

Why not help out one of those thousands of people who are currently on waiting lists for a specific organ? Many of those waiting are still in the prime of life. An organ donation can make the difference between life and death. Our decision, while not easy, was made lighter by knowing that someone else would possibly receive the gift of life even as we journeyed into our own grief and loss.

Was there a downside to...organ donation? Yes, there was. We had to prolong the inevitable by agreeing to multiple tests in order to determine if in fact the organs were healthy and suitable for transplant. There were detailed personal history questions in order to mitigate any risks to potential recipients.

Let me assure members of this House [of Commons]...that they can rely on the safety of organ transplants in this country. This is because of Canada's strong organ transplant community and Health Canada's work in establishing rigorous safety requirements through the implementation of the safety of human cells, tissue and organs for transplantation regulations.

Many times since Betty's death on May 4, 2011, two days following her intracranial hemorrhage, I have reflected on the reasons that I am able to move ahead in spite of my deep loss. I can say that two things come to mind: first, my total confidence in Christ's victory over death and in the power of the Resurrection and that I will see her again; and, second, my knowledge that five others have been given the gift of life through Betty's death.

There is a third reason. Two years following Betty's death, the amazing gift of my marriage to Darlene has given me renewed joy in my journey, and I am indeed grateful and blessed to have walked this journey.

As I said earlier, thousands of Canadians are on the waiting list for a life-saving transplant. I urge all Canadians to step up and register at beadonor.ca. We can do better than the 20% registration rate. I think we can even do better than the 52% rate that I referred to from my communities in Kitchener—Conestoga. Why not aim for at least a 75% registration rate? It will almost certainly save a life.

By supporting Bill C-316 and this motion, Motion No. 189, and, most important, people taking the time to register themselves, every one of us can make a positive difference.

Canada Revenue Agency ActPrivate Members' Business

November 7th, 2018 / 7:15 p.m.
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Liberal

The Assistant Deputy Speaker Liberal Anthony Rota

The House will now proceed to the taking of the deferred recorded division of the motion at second reading stage of Bill C-316, under private members' business.

The House resumed from November 5 consideration of the motion that Bill C-316, An Act to amend the Canada Revenue Agency Act (organ donors), be read the second time and referred to a committee.

Canada Revenue Agency ActPrivate Members' Business

November 5th, 2018 / 11:50 a.m.
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Liberal

Bill Casey Liberal Cumberland—Colchester, NS

Mr. Speaker, I am pleased to rise on Bill C-316 today. I sit on the health committee with the hon. member for Calgary Confederation, and if there is one thing I have learned about him, it is that he is dedicated and persistent when he has an issue he wants followed up. He has done a great job on this bill.

It is interesting that two of the last four speakers have said they have children who will need organ transplants. It just reminds me that we are all people, experiencing the same things everybody else in Canada experiences. We all have the same challenges. That is an incredible thing to have to face. I hope it works out well for both those members.

I would bet that if all 338 members could stand up and speak, they would all have stories about organ transplants. I have a story myself, which I will not go into, but it affects us all. It is critical that we do something about this. This is at least one step in the right direction, and I support it a hundred per cent.

It is almost embarrassing to me that Canada is in 18th place in the world in organ donation. It is almost not Canadian to be in 18th place, behind so many other countries. We should be doing much better. It would not take a lot to improve. A lot of it is just communication. A lot of it is focus.

In Spain, where they have twice the organ donation that we have, they have a very organized method. They educate doctors, and they have emergency rooms ready and available. They train people to improve the organ transplant success rate, as well as on the preservation of organs and so on. These are things we could do. They are not hard to do, and we should be doing them.

As one member said a little while ago, eight lives could be affected by one organ donor. Imagine, eight lives could be saved by one organ donor, and 75 lives could be affected one way or another. It is an incredible thing that we are so far behind.

I notice some of the members of the health committee are here today. In our committee, we have studied so many different diseases and health issues that could benefit from improved organ donation. For many of the subjects that we talk about, the only answer is organ donation, and here we are in 18th place in the world. It is hard to believe that we, as Canadians, accept that and continue on in that direction.

There are a lot of things we could do. We could expand the number of potential organ donors. We could change the rules to allow more people to donate organs, and we could educate our doctors in emergency rooms to these changes. That would help. We could have better transfer protocols. We could train doctors to help patients understand organ donation.

We heard at committee, over and over again, that it is difficult for a doctor who has worked so hard to save someone's life to then tell them that it might be a good idea to donate their organs. We heard that from doctors and health care providers. We could help doctors and the medical field in general to prepare patients for organ donation when the time comes.

A national registry is the key. We are not there yet, but hopefully we will get there. New technology could help preserve organs after they are harvested, so they last longer and can get to the people who need them the most. This is technology that we have within our reach. It is within our grasp. We can do it.

All of these things are very doable. They are very simple things to do, and would move us from 18th place closer to first place, which is where Canada should be. Canadians should not accept that we are in 18th place in this comparison. I do not accept it, and the member for Calgary Confederation certainly does not accept it.

I will be supporting Bill C-316, and I look forward to hearing about it at committee, hearing the pros and cons. I am sure there will be far more pros than cons, and perhaps we can find solutions to some of these problems I have listed and that some of the other members have talked about.

It should be easy to register. Just a little while ago, some of us checked our driver's licence to see if we were donors. I am a donor, but it is not on my licence. Maybe if something happened to me, it would not be known that I was a donor. It should be on my driver's licence. That is a simple thing we could do. It is on my health card. It says “donor” right on it, but it is not on my driver's licence. If the wrong card is picked to look at, somebody might lose. The opportunity to help eight people might be lost. I do not want that to happen.

That is really all I wanted to say. I want to say that I support Bill C-316. I congratulate the member. I know how determined and persistent he is on this, and he is right. All of us should accept the challenge to not accept that we are in 18th place in the world in organ donation. I look forward to the bill progressing through the system.

Canada Revenue Agency ActPrivate Members' Business

November 5th, 2018 / 11:40 a.m.
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Conservative

Matt Jeneroux Conservative Edmonton Riverbend, AB

Mr. Speaker, it is my pleasure to speak today in support of the private member's bill sponsored by the member for Calgary Confederation to streamline organ donation. I want to thank the member for his work on the bill, as well as his hard work in helping to create the organ donation registry in our home province of Alberta when we served in the provincial legislature together. I had the opportunity to speak to both his provincial bill and now to the federal bill, hoping that we will see similar results in passing both of them.

Almost every Canadian has heard about someone whose life was impacted by organ donation, whether in the media or through personal connections. The organ donation of one person can save up to eight people, and a tissue donation can impact more than 70 people. Of course, even more people than that are impacted as families get to keep their loved ones alive longer because of donation. However, only a quarter of Canadians are registered to donate.

Our organ donation rate is among the lowest in the world. Currently, almost 5,000 Canadians are waiting for a transplant on which their lives depend. Sadly, about 260 Canadians lose their lives every year while waiting for a transplant that, sadly, never happens. That is about five deaths per week, or one death about every 30 hours, that could be prevented if they had a viable donor. Ninety per cent of Canadians say that they support organ and tissue donation. However, in practice, less than 20% have actually made plans and registered to donate.

In the past 10 years, the number of deceased organ donors has gone up by 42%. The number of people needing a transplant has also gone up in that time. Therefore, a more effective method is needed in order to increase the size of the organ donor base in Canada. The proposal of the member for Calgary Confederation is so simple and yet so smart. Implementing it could mean a huge increase in the number of organ donations in Canada, and my friend is proposing to add an option on tax revenue forms, where people can declare whether they would like to register to be an organ or tissue donor. If they check yes, their names and information are given to their provincial government and added to an organ donor database.

Almost every Canadian fills out these forms annually. Making registration for organ and tissue donors easier will save more lives. It will be the same process for everyone, no matter what province they live in. There is no need to create new computer and database systems, because the existing system can do that job.

This method will reach the most potential donors at the lowest cost. It will also help identify organ donors when someone dies outside of his or her province of residence. The new system proposed by the member for Calgary Confederation will be more efficient at identifying donors, resulting in more lives being saved.

Earlier this year, our country suffered a horrible tragedy when 15 young men and one young woman from the Humboldt Broncos hockey team died after a bus crash. After that tragedy, there was a spike in the number of people who signed up to become organ donors. I wish it had not taken such an unfortunate accident to encourage people to become organ donors. However, I am glad to see organ donation on the rise.

The current process to register to become an organ donor in my province of Alberta involves going online to put one's name on the organ donation registry. This was spearheaded by the member for Calgary Confederation while he was a member of the legislative assembly, and it is so great to see him work so hard to continue this good work on a national scale here in Parliament.

It is so important to have the registry, and the number of organ donors has risen since it was implemented in 2013, but it is just not front of mind for most people. With so many things going on in our lives, we do not always remember to complete this type of task. Bringing the option of organ donation right to Canadians instead of waiting for Canadians to come to a website will no doubt result in an increase in the number of registered donors in Canada.

Currently, the only proactive approach by governments is to register Canadians via the driver's licence registration process. However, the percentage of Canadians with a driver's licence is dropping in every age category. While young Canadians are our future donors and they have the healthiest organs, less than 70% of 19-year-olds obtain a driver's licence. This indicates a 20% drop from the previous generation.

In Canada, only 1,600 people are added to organ transplant waiting lists each and every year. On top of that, there is also a limited time in which organs can be viable for transplant to a matching donor on the waiting list. It is typically less than a day after death. With the continuous decline of driver's licence registrations, Bill C-316 is a sensible solution to gather more donors, decrease the numbers of Canadian patients on donation wait-lists and, ultimately, save more lives.

Kidney donations are the most common organ transplant in Canada, followed by the liver, lungs and heart. A study done by Canadian Blood Services examining organ transplants between 2006 and 2015 found that transplants benefit both patients and provincial health services. According to the study, “Kidney transplantation is the best therapy for patients with end-stage kidney disease. Compared to dialysis, it can more than double a patient's life expectancy. Although the data in this section speaks primarily to the benefits of kidney transplantation, other types of transplantations, such as lung, heart and liver, are also beneficial.”

The same study found that transplants can save governments money because of reduced hospital stays. It is estimated that Ontario alone already loses approximately $100 million every year to support the care of those on the waiting list for a donated kidney. The study states:

Liver, heart and lung transplants may also reduce costs for governments. Although there is limited information on the cost avoidance associated with the transplantation of organs other than kidneys, a U.K. report states, “there is some evidence that the care of patients with life-threatening organ failure may involve many days or weeks of in-hospital care, including significant time in intensive care (which is very expensive), that would be avoided if transplantation had taken place.”

It is evident that organ and tissue donation benefits patients, families and taxpayers because of decreased health care costs. However, other countries are far ahead of Canada in terms of successful transplants. As I said earlier, Canada has a low organ donation rate. Figures from 2015 show that only 1% of Canadians who die in hospital donate their organs. We lag behind many other countries, including the United States, in registered donors.

In Europe, many countries have opt-out organ donation systems. This means that all citizens are automatically registered as organ donors and have to deregister themselves if they do not wish to be a donor. It is because of this system that Spain leads the world in the number of registered donors.

However, the system proposed by the member for Calgary Confederation achieves a happy medium. It will reach almost all adult Canadians without being heavy-handed. Canadians do not want the government telling them what to do. With the tax form system, Canadians can decide for themselves what they want to happen to their bodies. This would be a most convenient system for potential donors.

Additionally, it would be practically free to implement, because it would utilize existing documents. This system is economical for taxpayers and would ultimately help to save more lives.

Many of us do not like to think about it, but we never know when or if we will need an organ donation. Our lives could change in an instant. Many families have been put in a position where they have to wait for life-saving organs or tissue to become available. This is an incredibly nerve-racking wait. Often, families do not know whether the donations will come in time.

In Edmonton right now, a young girl from Okotoks is waiting to receive a number of life-saving organs. Thousands of other Canadians are in the exact same situation. The wait is agonizing for these families. I would like us as parliamentarians to do everything we can to decrease the number of families in this situation.

Mr. Speaker, Bill C-316 would be a great amendment to the Canada Revenue Agency Act. As I have said, it would reach more Canadians, increase the number of donors, save taxpayers money and ultimately save more lives. This is a sensible solution to our problem of low donor numbers. It is a very straightforward private member's bill, and I am pleased to support it today. I urge all members of this House to consider supporting Bill C-316.

I want to thank my friend, the member for Calgary Confederation, for bringing this bill forward. I also want to thank him for all the work he has done on organ donation, both here and in Alberta. He was instrumental in bringing in Alberta's organ donation registry, and he has stayed true to his word to continue to fight right here in Parliament for strong organ donation access.

I hope the next time we all do our taxes, we see the option of becoming an organ donor right there on the forms.

Canada Revenue Agency ActPrivate Members' Business

November 5th, 2018 / 11:30 a.m.
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NDP

Gord Johns NDP Courtenay—Alberni, BC

Mr. Speaker, it is with enormous pleasure that I stand here today to speak in support of Bill C-316, an act to amend the Canada Revenue Agency Act, organ donors. This initiative was brought forward by my friend and colleague, the member for Calgary Confederation. The member has worked tirelessly in this Parliament to get this organ donor bill passed.

There are some issues that transcend party lines and this bill is certainly one of them. We have a responsibility to support one another when something as simple as an adjustment on our tax form can save the lives of hundreds and thousands of Canadians.

Canada is a nation that has much to be proud of, but where organ donation is concerned, too many Canadians are dying while on the wait-list. Although 90% of Canadians support organ donation, less than 20% have made plans to donate. According to global comparison statistics from the Council of Europe, Canada has a donors per million people rate of 20:1. This low ratio places us 18th internationally in organ donation, behind Italy with a donor rate of 24:7 and the U.S. with a rate of 30:8. Spain has the highest national donors per million people rate at 43.8. This is a ratio that we should set our sights on as a country.

We have the opportunity to drastically change the lives of individuals and their families.

In a 2016 study, the health committee found that close to 4,500 people were on the wait-list, and a staggering 6% of people died while waiting for an organ. Furthermore, according to the data, while about two-thirds of people on the wait-list received an organ, that meant that one-third of people on the wait-list did not receive an organ. This wait-list is ever-increasing. It is estimated that over 1,600 Canadians are added to it every year.

While true that the number of organ donors has increased over the past decade, they are not increasing at a high enough rate to meet the demand. People are still dying needlessly because there are not enough donors on the list. We must make every effort to ensure that every Canadian who needs an organ can be matched with someone who can and is willing to donate an organ.

Again, these deaths are not because Canadians do not support organ donation, but rather opportunities and infrastructure are missing. This is not something we can hope will get better without action, and many people and organizations have worked determinedly over the years to address this.

The current version of Bill C-316, as tabled by my colleague from Calgary Confederation, builds on legislative and advocacy work done over the past 20 years around creating a system of organ donation.

Similar legislation has been introduced numerous times since 1999.

Lou Sekora, a Liberal MP, introduced a bill calling for the establishment of a national organ donation registry in 1999 and again in 2000. Judy Wasylycia-Leis, the former NDP MP from Winnipeg South, introduced legislation on this topic in 2002, 2003 and again in 2008. Malcolm Allen, a NDP MP from Welland, introduced similar legislation in 2009 and 2013. In 2016, my colleague from Edmonton Manning reintroduced legislation calling for the establishment of a national organ donor registry. Now we are once again presented with an opportunity from my colleague, the member for Calgary Confederation. That equals nine times over the past 20 years that this has been introduced by people from all political parties. This many attempts over the past two decades clearly demonstrates that there is a huge void this bill can fill.

We should do better, we need to do better and we can do better.

In February 2016, I stood in the House with the other MPs from the NDP caucus and the Conservative caucus who unanimously voted yea for the earlier version of this bill, Bill C-223, which was a private member's bill put forward by the member from Edmonton-Manning. MPs have worked tirelessly to get legislation in place that facilitates organ donation and once again to encourage all MPs to vote in favour of this important legislation. Indeed, along with many of my colleagues here, I look forward to and will work toward a day when every Canadian in need of an organ has access to one.

It is not a stretch to say that this incarnation, Bill C-316, is the ninth version of a long line of attempts to get some legislation put in place around this very important subject. Let us ensure that we do not have to sit here for a 10th. Let us put partisan blindness aside and stop letting it get in the way of good legislation.

A piecemeal approach with different programs in different provinces was the exact reason why we asked for the creation of a pan-Canadian organ donor program in the first place. Federal legislation is needed to fill the legislative void on this subject. We need to pass this. This is not a simple matter of provincial jurisdiction. We need a centralized list of people waiting for an organ. By way of this legislation, we are simply looking for co-operation in the service of people who sent us here, Canadians.

Many organizations have repeatedly asked for a national strategy and national oversight of the organ donation system.

Dr. Lori West, the director of the pan-Canadian National Transplant Research Program, aptly said, “we cannot afford to be stymied by the makeup of our country. We can turn it to our benefit and really use those sorts of strategies to get where we want to go.”

The Kidney Foundation of Canada stated, “[We] recommend that the federal government take steps to improve Canada’s Organ and Tissue Donation and Transplantation system and save more lives by: Implementing a national strategy and oversight to ensure every potential deceased donor is identified and that every person awaiting transplant has equitable access to organ transplantation across the country.”

Dr. Philip Halloran, who is a professor of medicine at the University of Alberta, stated, “Donations in Canada are not performing at the standard that our colleagues in the United States are performing and there isn’t really any excuse except organization and accountability.”

The testimony from these experts underscores once again that there is a dire need for federal legislation and oversight over this very critical issue.

Once again, I want to urge my colleagues to support this bill and a commitment to progressive co-operation and getting results for Canadians.

I want to thank my friend from Calgary for championing this very important issue.

Canada Revenue Agency ActPrivate Members' Business

November 5th, 2018 / 11:25 a.m.
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Deborah Schulte Parliamentary Secretary to the Minister of National Revenue, Lib.

Mr. Speaker, the Government of Canada recognizes the value of organ and tissue donation and transplantation, and has an important role to play in protecting the health and safety of Canadians. We all recognize that more work is needed to address the chronic shortages of organ and tissue donations for transplantation across the country. It is only by working together that we will continue to improve the organ and tissue donation and transplantation system, and ensure that Canadians have timely and effective access to care.

The Canadian Transplant Society notes that more than 1,600 Canadians are added to organ wait lists every year. That is because transplants are often the only treatment for end-stage organ failure. In addition to treating conditions like cornea blindness, diabetes, and birth defects, organ transplants and tissue and organ donations can also help burn victims recover, remove the need for long-time dialysis, reduce amputations, repair childhood heart problems, assist in heart bypass surgery and heart failure, replace cystic fibrosis diseased lungs with healthy ones and provide a new cosmetic solution for disfigured facial accident victims.

We know that transplants both improve the quality of life of their recipients and also save lives.

The government recognizes that too many Canadians are on organ wait lists. In 2017, more than 4,333 people were waiting for transplants across Canada. That said, over the past decade the number of deceased organ donors has gone up by 42%. While that is encouraging, unfortunately, the number of people needing a transplant has also gone up in that time. In many ways, we not making the progress we need and many people are continuing to suffer and are dying waiting for a donor organ.

As our population ages, the need for transplants will only increase. Any one of us could one day find ourselves in need of a donation. I just want to tell a private story. This is very close to my heart. I did not know this when my boys were born, but both of them have a very serious heart defect that will ultimately require them at this point in time to have a transplant. Obviously, I am very excited about the technological changes in medical services today and I am hopeful maybe that will not be the case. However, I am mindful that both of my boys may need a transplant in their future. This is an issue that is very close to my heart.

That is why the Government of Canada continues to work with Canadian Blood Services and the provinces and territories to help increase organ donation rates and raise public awareness about organ donation across Canada. People need to know that registering to donate is not complicated and that registration can be done at any time. It is not necessary to wait until death. In fact, that is often too late, especially if loved ones are not aware of your wishes.

Living donors who are the age of majority and in good health can donate a kidney, part of their liver, a lobe of their lung and continue to lead full and rewarding lives. What could be more rewarding than saving someone's life? We know that one donor can potentially save as many as eight lives and improve the quality of life for up to 75 people.

I want to tell a personal story. In my riding we had a wonderful teacher and outstanding member of our Ahmadiyya Muslim community who died suddenly of a brain haemorrhage. The family and she had decided to donate her organs if she died, and their decision saved the lives of eight members of our community. Those community members would not be living if it had not been for her tragedy. Thus, from one family's tragedy, eight other families have been blessed to have their loved ones still with them.

This is a huge gift, not only for the individuals with serious health problems who are direct beneficiaries of donations, but as I mentioned, also countless family members and our whole community at large. Their lives are also transformed with these miracles of life.

As I stated earlier, the government recognizes the value of organ and tissue donation and transplantation and has an important role to play in protecting the health and safety of Canadians. The Minister of Health is working with the provinces and territories to facilitate collaboration on an organ and tissue donation and transplantation system that gives Canadians timely and effective access to care. Canadians can be assured that we are committed to improving the organ and tissue donation and transplantation system.

In collaboration with provinces, territories and key stakeholders, we are establishing leading practices, strengthening professional education and raising awareness to improve organ and tissue donation. The Government of Canada also continues to work with Canadian Blood Services and our provincial and territorial partners to increase the donation rates of blood and blood components because we need to raise public awareness about that all across Canada. The need for blood donations is also great.

There is a constant demand. People do not realize that it takes five donors to save someone who needs heart surgery; 50 donors to help just one person in a serious car accident; and eight donors a week to help someone going through treatment for leukemia. I am sure many members are aware of people in their communities who have been dealing with that disease. This is why it is so crucial to get the message out that it is in everyone to donate.

Canadians can count on the government to continue to improve the organ and tissue donation and transplantation system. To demonstrate this commitment, the Minister of Health announced on October 18, renewed funding of $3.3 million for the Canadian Donation and Transplant Research Program.

This funding also allows the CDTRP, Canadian Donation and Transplant Research Program, to continue its research to advance organ and tissue donation and transplantation in Canada. It is through research that we can increase the availability of transplants for Canadians and transform clinical outcomes for transplant patients from coast to coast.

Our government is committed to supporting the organ and tissue donation and transplantation needs of Canadians and is looking closely at Bill C-316 and other opportunities to determine how best to support that objective.

Canada Revenue Agency ActPrivate Members' Business

November 5th, 2018 / 11:05 a.m.
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Liberal

Ron McKinnon Liberal Coquitlam—Port Coquitlam, BC

Mr. Speaker, I am pleased to rise today to speak to the private member's bill of the member for Calgary Confederation, Bill C-316. The member is to be commended for his work and advocacy to facilitate organ donation in Canada. I fully support what the member is trying to accomplish with Bill C-316 and co-seconded the bill, and will vote in favour of it at second reading.

In light of a chronic shortage throughout Canada, there can be little doubt that measures must be taken to increase the number of organ and tissue donations available for transplantation. Bill C-316 would enact a provision that would authorize the Canada Revenue Agency to enter into an agreement with a province or territory regarding the collection and disclosure of information required for establishing or maintaining an organ donor registry in the province or territory. This would give Canadians an additional opportunity to become organ donors; as such, it is likely to increase the number of donors across the country over time.

In the spring of 2018, the House of Commons Standing Committee on Health, HESA, of which I am a member with the hon. member, examined the status of Canada's organ and tissue donation procurement system. The committee heard from numerous witnesses, who shared their insights on how the federal government could strengthen Canada's organ donation and transplantation system. The committee tabled its report on this study on September 25, 2018. Among the seven recommendations made, recommendation number 4 reads as follows:

That the Government of Canada identify and create opportunities for Canadians to register as organ donors through access points for federal programs and services in collaboration with provincial and territorial organ donation programs.

This is exactly what Bill C-316 would do by making the Canada Revenue Agency, which interacts with millions of Canadians every year, an additional vehicle in the organ donation ecosystem.

It was no surprise to hear witnesses express support for Bill C-316 during the committee's study. According to the Canadian Transplant Society, more than 1,600 Canadians are added to the organ wait-list every year. While 90% of Canadians support organ and tissue donation, fewer than 20% of Canadians plan to donate their organs or tissue.

There is no question that more must be done to address the serious need for organs and tissue available for donation. In 2017, more than 4,333 people were waiting for transplants across Canada. These are our relatives, friends, neighbours and colleagues. That same year, 2,979 organs were transplanted. However, hundreds of Canadians could no longer wait. In 2017, 242 people died while waiting for a transplant.

To address this situation, the attitudes and behaviours of Canadians must change. Individuals need to be informed that it is not complicated to register to be an organ and tissue donor. Individuals can register at any time. It is not necessary to wait until the end of one's life to become a donor, nor is age necessarily an impediment. We know that one donor can potentially save as many as eight lives and improve the quality of life for up to 75 people. This became clear to Canadians recently, following the terrible tragedy that hit the Humboldt Broncos. After the accident, it was revealed that one of the victims had registered to be an organ donor and went on to save six lives. This prompted Canadians from all walks of life, young and old, to become donors themselves. Registrations skyrocketed across the country.

The government recognizes both the importance of donations and the role the transplantation of organs and tissues plays in the protection of the health and safety of Canadians. Canadians can be assured that we are committed to improving the organ and tissue donation and transplantation system in collaboration with provinces and territories and key stakeholders.

From 2008 to 2009 and from 2017 to 2018, provinces and territories, excluding Quebec, and the federal government provided over $70 million in funding to Canadian Blood Services to play a role in coordinating the organ and tissue donation and transplantation system by focusing on four areas: developing and implementing a national strategic plan, including a mandate, roles and responsibilities in a nationally coordinated system; establishing leading practices, professional education, knowledge translation, and public education and awareness campaigns; enhancing system performance reporting, including public reporting; and developing and maintaining interprovincial organ-sharing programs through the Canadian Transplant Registry. During this period, Quebec also contributed $845,000 per year to Canadian Blood Services to participate in certain elements of its program.

At the moment, only a fraction of Canadians are registered donors, despite it being easy to become one. Depending on where people live, there are different ways to register and decide what they want to donate. Of course, if Canadians opt to become organ and tissue donors, it is important to discuss this decision with those closest to them. People must ensure that family and friends are aware of their wishes.

For many Canadians it may just be a matter of becoming more aware and taking a step that could dramatically change the lives of thousands of Canadians facing health crises.

It is only by working together that we will continue to improve the organ and tissue donation and transplantation system and ensure that Canadians have timely and effective access to care. Rest assured that the government will continue to assist on the important issue of organ and tissue donation and the transplantation needs of Canadians.

The House resumed from September 25 consideration of the motion that Bill C-316, An Act to amend the Canada Revenue Agency Act (organ donors), be read the second time and referred to a committee.

Organ and Tissue DonationPrivate Members' Business

September 27th, 2018 / 6 p.m.
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Conservative

Len Webber Conservative Calgary Confederation, AB

Mr. Speaker, it is my pleasure to rise today to speak to Motion No. 189, which seeks to improve the organ and tissue donation system here in Canada.

This is a very timely issue for debate in the House, in a week that has seen the tabling of the health committee's report on organ donation, the second reading of my private member's bill on organ donation, and now Motion No. 189 on organ donation. It has truly been an organ donation week here in the House.

Like the hon. member for Thérèse-De Blainville, I am a long-time advocate of organ and tissue donation in Canada. I have heard many triumphant and also tragic stories related to organ and tissue donation.

As a former MLA, I had a bill pass in the Alberta legislature that resulted in the creation of the Alberta organ and tissue donation registry.

However, more work needs to be done to get Canadians on board, so I introduced another bill just this week here in the House of Commons. That bill proposes to amend the annual income tax return to ask Canadians if they wish to become organ and tissue donors. It has the potential to register millions more donors.

Over 90% of Canadians support organ and tissue donation, but just over 20% of Canadians are registered. We need to do better. We can do better.

I am honoured to have the member for Thérèse-De Blainville as an official seconder of my bill, and I certainly will be supporting his initiative here with Motion No. 189.

Also, on Tuesday of this week, the House of Commons Standing Committee on Health presented an important report regarding organ and tissue donation. The report is an accumulation of the work we did together after I proposed a study at committee.

I must note that the committee did an amazing job of working together toward a common goal. I must thank all hon. committee members for allowing this study to happen. This non-partisan effort, along with the tremendous expert testimony that we received, made the report a fair and accurate representation of the study we undertook.

I would like to take a moment to highlight some of the key items from the report, as they speak directly in support of Motion No. 189.

We found that the federal government could help by first, supporting the adoption of best practices in organ donation and transplantation across all jurisdictions; second, investing in national public education and awareness campaigns to promote a conversation among family members regarding organ donation; third, creating more opportunities for Canadians to register their decisions regarding organ donation; and fourth, providing sustained funding for research and data collection to ensure that organ transplantation results in improved health outcomes for Canadians.

The health committee quickly agreed on a number of key recommendations after listening to these key stakeholders and experts.

The first recommendation from the health committee is that the Government of Canada provide the Canadian Blood Services with sustained funding to strengthen and expand upon existing interprovincial organ donation and transplantation-sharing programs; develop a sustained national multimedia public awareness campaign to promote organ donation, and promote the adoption of best practices in organ donation and transplantation across the country.

The second recommendation is that the health minister establish a working group with provincial and territorial ministers of health to examine best practices in organ donation legislation across the country, such as the adoption of mandatory referral of any potential organ donor, and to identify any barriers to the implementation of these best practices.

Our third recommendation is that the Government of Canada identify and create opportunities for Canadians to register as organ donors through access points for federal programs and services, in collaboration with provincial and territorial organ donation programs. Of course, I have to note that this particular recommendation directly supports my Bill C-316 and my efforts to amend the annual tax return so that Canadians can register as donors.

The fourth recommendation of our health committee is that the Government of Canada provide information and education to Canadians regarding organ donation as part of its efforts to promote organ donation registration through federal programs and service access points.

Our fifth recommendation is that the Government of Canada continue to provide funding for organ donation and transplantation research through its networks of centres of excellence program.

Finally, the sixth is that the Canadian Institute for Health Information and Canadian Blood Services work together to develop a national data collection system to monitor outcomes in organ donation to support research and systems improvement.

Improving the transplant system in Canada is not a political issue; it is a human issue. I believe we have a united House when it comes to dealing with this issue of organ donation, and I firmly believe that we can improve the system. We have the potential to save hundreds of lives and improve the quality of the lives of many Canadians in every community of this great country. Inaction or delays in making necessary improvements will cost lives and money. It is a known fact that life-saving transplants save us costs in our our medical system because they remove the dependence of thousands of people from costly treatments and hospitalizations. This leaves more resources for other challenges to be addressed.

I recognize that in Canada, because organ and tissue donor registries are a provincial jurisdiction, we face some unique challenges in implementing change. That said, I also believe that where there is a will there is a way. I believe that Canada can move from being a country with one of the worst organ-donation rates in the world to one of the best. I believe that Canadians will register in greater numbers if we make the process easier and more convenient. I believe we need to be innovative in how we reach potential donors and how we educate and inform potential donors. I also believe that we need to do a great deal more work to make sure that families respect the wishes of their family members. The number of people who want to donate but have that decision overruled by their surviving families is shocking. One study suggests that one in five donors does not have his or her relatives respect his or her wishes to donate. We need to open up the discussion in Canada so that we do not bury perfectly good organs every day while other people in our community face death daily, waiting for a life-saving transplant.

In closing, I would again like to thank my colleagues from all parties for their support on this issue that is so close to my heart. I want to thank them for their non-partisan and collaborative support to improve the lives of so many Canadians. I believe we can achieve some great things here if we all continue to pull in the same direction. For this reason, I am proud to be a strong supporter of Motion No. 189.

Organ and Tissue DonationPrivate Members' Business

September 27th, 2018 / 5:35 p.m.
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Conservative

Marilyn Gladu Conservative Sarnia—Lambton, ON

Mr. Speaker, I am very pleased to rise today in the House to speak in favour of Motion No. 189, regarding organ and tissue donation.

I would like to begin my speech by thanking the member for Thérèse-De Blainville for moving this motion and for his ongoing efforts on this file. I would also like to thank the member for Calgary Confederation for his years of work on this file and, more recently, for introducing Bill C-316.

I want to take this opportunity to draw attention to the most recent report of the Standing Committee on Health, entitled “Organ Donation in Canada”. This unanimous report is the ideal example of how members from all parties can work together to improve Canadians' health. Organ donation is an impartial and non-partisan issue. I would like to thank all members of the Standing Committee on Health for their hard work. In particular, I want to thank the member for Calgary Confederation for raising this issue three years ago. Organ and tissue donation is a Canadian concern, and I hope we will not forget that as we continue this debate.

The Standing Committee on Health made several recommendations to the federal government in its recent report, including that the government provide Canadian Blood Services with greater funding in order to expand upon interprovincial programs and develop an awareness campaign. The committee also recommended that the Minister of Health establish a federal-provincial working group to examine best practices across the country and that the federal government consider the feasibility of a presumed consent system for organ donation.

Along those same lines, I would like to thank all the groups, organizations and Canadians who have reached out to the health committee and to other members of Parliament to highlight the importance of this issue. This is a national issue that needs be addressed. Being an organ donor can save up to as many as eight lives and can improve the quality of life for up to 75 people, without counting the family and loved ones of those awaiting treatment. Organ and tissue donation play a large role in the Canadian health care system and are truly life-changing. I would like to take this opportunity to encourage all Canadians to visit BeADonor.ca and register.

With respect to statistics, more than 1,600 people are added to the organ donor wait-list each year. With respect to the demand on our health care system, over 75% of Canadians on the organ donor list are in need of a kidney transplant, 10% need a liver, 6% need lungs and 4% are waiting for a heart. This is a tremendous need. Considering only 1% of deaths in hospitals end up being organ donors, more needs to be done to increase the number of possible donors across the country.

When most people think of organ donation and of being an organ donor, most Canadians think of organ donation as happening after death. However, living organ donation is also an important part of our medical system. Living organ donation can include a kidney, part of the liver or a lobe of the lung. British Columbia and Alberta have the highest living donor rates in Canada, coming in at 20 living donors per million people. Often overlooked, I would encourage all Canadians to further inform themselves on becoming a living donor.

Another uniquely Canadian concern is the differences between provincial systems. Different registration systems, registration rates, medical practices and education frameworks make the Canadian organ donor system we have now extremely fragmented. Where one lives should not impact ones access to health care, but that is the reality in Canada. Whether it be palliative care, surgery wait times, prescription medication access or organ donation rates, the lack of consistency between our provinces leaves many Canadians without the care they need and without the opportunities other Canadians may have access to. Where people live should not have an effect on their quality of care.

Internationally, there are a number of models we could look to for best practices. Canada has what is called an opt-in system, meaning people do not become listed as organ donors until they register through their respective province. This has led to less than 25% of Canadians being registered as organ donors, which is a stark contrast to the figure of 90% of Canadians who are in favour of organ donation.

Another very popular organ donation system would be the opt-out model, wherein people are considered to be organ donors unless they officially opt out. As we can imagine, this leads to much higher donor rates, such as in Spain, which has an opt-out model. In less than a decade the country passed from having 15 donors per million to 40 donors per million, and had more than 4,600 organ transplants in 2016 alone. This is in comparison with the 21 per million donor rate and the 2,835 organ transplants in Canada in the same year.

This system has been brought up on numerous occasions. I have heard from many Canadians who believe that an opt-out model would lead to a drastic increase in organ donation figures. Today, in Ontario, there are over 1,500 people waiting for life-saving organs. Even more shocking is that every three days, someone in Ontario will die because they have not received an organ.

For example, Health Canada's website shows that in 2016, 4,500 Canadians were waiting for organ transplants, 2,800 organs were transplanted, and 260 people died waiting for a transplant. That means 260 lives were lost because of the shortage of organs in Canada. That is simply unacceptable.

However, simply having a national consensus is half the battle. Family refusal rates can be detrimental to organ donation numbers and, as such, I would encourage every family to have the conversation. Organ donation saves lives and being aware of a loved one's intention is of the utmost importance.

We have heard some discussion already about how important it is for family members to know of a loved one's choice to be an organ donor. They should have those conversations before the difficult time when a loved one has passed and the family is left to carry out that person's wishes. It is a good idea to do that. Sometimes people think they are too old to be donors, but that is not the case, because the oldest tissue donor was 102. It is never too late to become a donor. I believe the oldest organ donor was in his nineties, so it is certainly something people should consider and it is never too late to change their minds and get on the list.

When it comes to organ donor best practices, Ontario, B.C. and Quebec have some excellent practices, not just in making sure that organs can be used but in the technology they are using to do organ transplants. We can see how a tragedy like the one in Humboldt resulted in 16 deaths, but one of the people was an organ donor and was able to save eight lives. Not only that, but the attention that news of that got encouraged others to take the time to become an organ donor. If people are watching, I would encourage them to go online to beadonor.ca and sign up now. It does not take very long, but it could make a difference to someone's life.

Motion No. 189 is definitely in line with both my colleague's private member's bill, Bill C-316, as well as with all the testimony heard at committee. All of the parties have expressed their support for further improvements in this area and, as such, I will be supporting Motion No. 189. I would encourage my colleagues on all sides of the House to do the same. I want to thank members on both sides for bringing this issue forward. I love to see examples of parliamentarians working together in a positive way for positive outcomes for Canadians.

Canada Revenue Agency ActPrivate Members' Business

September 25th, 2018 / 6:40 p.m.
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Liberal

Rob Oliphant Liberal Don Valley West, ON

Mr. Speaker, I am very pleased to rise in the House today to speak in support of C-316, an act to amend the Canada Revenue Agency Act (organ donors). I am also proud to be one of its seconders.

I want to begin by thanking and commending the member for Calgary Confederation for his work in preparing this bill and helping to do two things: one to help Parliament, the government, and Canadians who engage in an important conversation about organ donating; and also to suggest a way to improve the lives of people so that more people can inherit that gift of life through organ transplants.

This is no less than a matter of life and death. As a United Church of Canada minister, I have had the privilege of helping families in the most difficult times of their lives. Those times have involved people who have lost loved ones, often tragically and unexpectedly, who were searching for solace and meaning in the face of often unspeakable grief. I have also worked with individuals who were waiting for life-saving, or life improving, surgery that involved receiving an organ or tissue from either a living person or one who had just died, but whose organs could go on living in their body, giving them a second chance at living a full life.

I do have a bias on this topic. I am unabashedly in favour of finding ways to open the conversation about organ donation and finding ways to make it as easy as possible for this to happen across our country.

An organ donation is called the gift of life. However, for me there are two gifts happening simultaneously. One, obviously for the recipient, whose life may be well saved by the donation, but also another, the gift for the donor and their family. In my experience, the donor and his or her family often receive as much, or even more, benefit from the organ donation. For the family, it often helps to make sense and give meaning in the midst of a tragic loss.

I was 11 years old when Dr. Christiaan Barnard performed the world's first human-to-human heart transplant in Cape Town, South Africa. I can still remember watching the news that night and being absolutely overwhelmed at that possibility. He transplanted the heart of Denise Darvall, who had died from a head injury, into the chest of Louis Washkansky. While he only lived for 18 days following the surgery, he regained consciousness and taught his medical team important lessons about the immune system and anti-rejection drugs. The second patient, whose transplant happened 50 years ago this year, lived for nineteen months, and opened up the possibility for heart patients around the world to have hope for a healthy, happy, full and long life.

We have come a long way since then. Modem medicine now allows for transplantation of organs including the heart, kidneys, liver, lungs, pancreas, intestine, skin and thymus. Tissues that may be transplanted include bones, tendons, muscles, corneas, heart valves and veins. Medicine continues to grow and offer life-changing opportunities for people suffering from many afflictions. To change lives, it takes the willingness of people to donate their organs or tissue, and it takes systems that facilitate that in the most humane and efficient ways possible.

This bill quite simply would amend the Canada Revenue Agency Act to authorize the Canada Revenue Agency to enter into an agreement with a province or a territory regarding the collection and disclosure of information required for establishing or maintaining an organ donor registry in that province or territory.

During the other speeches I double-checked my own status. I first checked my Ontario licence to see if I was a donor, and it was not there. Then I checked my health card, only because I was prompted when I got to the website for the Ontario government. It is not an easy process. An easier process is to check a box when we are filing our income tax return. It is not difficult.

Our government recognizes the value of organ and tissue donation and transplantation, establishing leading practices, strengthening professional education and raising awareness. We have invested money with Canadian Blood Services and in research as well, but more can be done. This is quite a simple way to expand the gift of life, to get better health outcomes. I encourage all members to support sending this bill to committee, where it can be both studied and perhaps even improved.

My hope is that the committee will recognize that provinces and territories could use help to register consent for organ and tissue donation, especially organ and tissue donation after death, post-mortem, at a time when it is easy to do. Believe it or not, doing taxes is not that hard. It is not that stressful.

People can take that moment when they are filing their taxes and take just a second to check the box and do it. However, being the kind of person I am, I want to push even a bit further to ask whether that is the only place the federal government can help. Perhaps the committee could consider in all respects where Service Canada encounters Canadians, such as when people get a passport, which is surely less stressful than filing income taxes. The committee has some work to do on this bill. I support it fully and I suspect that we will be able to find a way for the federal government to efficiently and humanely help people make this decision in a timely way.

Ensuring that we register advance directives is critical. It is one way to relieve the pressure on a family. In an emergency room when a family is dealing with a life-and-death situation when someone has been brought in after a car accident and the family is told at that moment that the person they perhaps loved the most in the world is dead or is about to die, and they are being asked to give permission for organ donation, it is a confusing time. As a pastor, I have often stepped in to help families when physicians or nurses are trying to remain neutral. My job as a pastor is to help them deal with that death, and I know that one way to deal with it is to make sure that life comes out of darkness and death. That is the way we can do it, by helping a family. If we can avoid having to do it at that time of urgent care in a hospital when someone has died and someone else is facing a tragic decision, then we should do it. It is a matter of life and death and we have the power. We do not often, in the House, get to save lives. We are not first responders. In this bill, we have a chance to save lives and we should take it. Ensuring that there is a safe, good, efficient way to register advance directives is part of our mandate as members of this House of Commons, and this bill would accomplish that.

We all have stories about this. A couple of years ago, I read a story that came out of a school shooting during a wave of violence. This particular story happened in Paducah, Kentucky. Several children died in a school shooting. Afterward, a reporter asked the mother of one of the little girls who had been shot what her thoughts had been as she raced to the hospital. She said she kept praying over and over again, “Lord, let my daughter live.” The reporter continued, “What happened when you found out that your daughter was dead?” The mother responded, “I started praying they would be able to use her organs so that others could live.” Indeed, that came about. What happened was that this little girl's heart was given to a man who desperately needed a transplant. Months later, the mother went to see him. She was introduced to the man and asked for one thing: Could she put her head against his chest to hear her daughter's heart beating again? This act was a gift to both families. It was a gift to a mother who had lost a daughter and a gift to a man who had new life: a little girl's heart beating and beating and beating.

In the House, we have a chance to make that kind of a difference. We can send this bill to committee, we can make sure it gets passed and we can save a life.