Thank you very much for allowing my daughter and myself to appear before this committee.
I believe it's important for politicians to look into the faces of the people who are affected by the laws this country passes. That's why my family paid for my daughter to come down here. We've since found we may have a little bit of a refund, which is wonderful.
Unlike the other people who have given submissions before you, I'm not the head or representative of a group or organization that has been helped or is being helped by the court challenges of Canada program. I'm simply here as the father of a child, and not just any child; as you can see, I'm the parent of nine-year old Mary Rollason-MacAulay, a child who was born with multiple disabilities and medical issues, a child who's only alive today because of doctors and her own strong will to live. She's a child who has been helped by the court challenges of Canada program.
It is for that reason that both Mary and I have travelled all the way from Winnipeg to Ottawa on behalf of our family and all the families with children with disabilities to ask for your support in continuing to fund and keep in existence the court challenges of Canada program.
When I was denied the bulk of my parental leave benefits in 1998, I was forced to go back to work after only receiving four weeks of benefits through employment insurance. What the court challenges program enabled our family to do was to hire a lawyer to challenge the validity of the federal legislation under section 15 of the Charter of Rights and Freedoms on the basis of age, disability, and family status. The legislated changes to the Unemployment Insurance Act at that time resulted in the loss of the bulk of my parental leave at the time when it was most needed, when Mary came home from hospital.
Instead of receiving my fifteen weeks of benefits when my severely disabled child came home from hospital at ten and a half months of age, the new Employment Insurance Act limited me to taking that time within a year of her birth, resulting in the loss of eleven weeks of benefits. I had, on the advice of medical professionals, waited until Mary got home from the hospital to take my leave because that was when it was deemed to be when Mary would need it the most.
Our constitutional challenge against the employment insurance program was successful, but without the help of funding from the court challenges program, our constitutional challenge against the act would most likely not have been successful. We not only were successful in our challenge on all three grounds of discrimination, but just as important, as a result of the challenge being launched the federal government of the day amended the act prior to the hearing.
Last September, in announcing the plan to slash $1 billion from the federal budget, of which cutting the court challenges program represented $5.6 million of the savings, Treasury Board President John Baird was quoted in the media as saying the program wasn't meeting the priorities of Canadians or providing value for money. As well, in talking specifically about the court challenges program, Mr. Baird said the federal government was no longer interested in funding opposition to legislation it believes is right.
I ask all of you to look at Mary and along with her all of the Marys with disabilities across the country, whether they are children or adults, and I ask you to ask yourselves whether her constitutional rights aren't meeting the priorities of Canadians, whether fighting the discrimination against Mary and others with disabilities is not providing value for money, and above all, whether any of you really believe that there will never be a future law passed that will not discriminate against Mary and others with disabilities across the country.
With our family's situation, it didn't matter that our situation and arguments actually persuaded the federal government to change the law to cover people like us before we had our day in court. Even after the government amended the legislation, because it wasn't retroactive, it still continued to fight our challenge to the very end. That's why Canadians needs the court challenges program.
Do I really think the federal government purposely meant to discriminate against newborns with disabilities? No. Do I think the federal government purposely changed the law to discriminate against newborns with disabilities? No. But do I think it's extremely hard for politicians and bureaucrats to know all of the ramifications that may come from their decisions to amend or create laws? Yes. As the umpire who heard our case said in his decision, and I quote:
[The commission]...by oversight or otherwise, strayed from its legislative objectives. This, in the circumstances, is not surprising. Legislating in the area of social legislation is both difficult and challenging. Court challenges multiply; pressure groups and social changes place considerable pressure and strain not only on Government but also upon Senior Public Servants who struggle to keep abreast of all developments.
It's not wrong for politicians and bureaucrats to admit mistakes and infringements on constitutional rights. Unfortunately, in our case the government never did admit that what they did was wrong, thus forcing us to proceed with the challenge. What is wrong is not to allow individual Canadians who have had their rights infringed to be able to make and mount a reasonable and meaningful constitutional challenge in a court. That's especially so when many of us are individuals who are still living with the discrimination. We are trying to fight for our constitutional rights, while still carrying on with our lives.
Mary's needs did not end the day she was released from hospital when she was ten and a half months old. They didn't end when she turned two, and they certainly haven't ended now.
If I'd had to continue the constitutional challenge by myself without the lawyer that I was able to hire through funding by the court challenges program, every minute, every day, every week that I would have had to spend to mount that challenge would have been time taken away from my daughter and our fight, literally, to keep her alive. The court challenges program put me on equal footing with the federal government. Whether I was with a lawyer or not, the federal government had a team of lawyers fighting against me, bringing to bear the full resources of the state. What individual without legal training could possibly have made a meaningful defence of the issue?
Even with a lawyer, the legal battles waged so long, as many do. Mary was in elementary school, enrolled in grade one, when the decision was finally made that the government's employment insurance program had discriminated against my daughter and me through her disability. But the length of the legal battle didn't bother us, because it was never our sole purpose to fight for just our family's rights. As we have discovered during our nine years of being intimately involved with disability issues, when an issue affects one person, there are many more who are also affected.
In our family, Mary and I were not the only ones affected by the employment insurance decision. Because I could not be home but had to work, it meant my wife actually bore the brunt of the EI decision. At that time, Mary was connected by a tube to a feeding machine 24 hours a day, seven days a week, and there were numerous times during the day when she could have aspirated into her lungs and she could have died. My wife and I were taught how to do CPR and were given a portable suction machine. Mary could not be left alone any minute of the day or night. Someone had to be awake with her 24 hours a day. Our eventual success and our eventual repayment to compensate me for the benefits lost was still put to good use earlier this year when Mary required more open-heart surgery in Toronto and my wife and I were off work for 11 weeks.
From where we sit, we believe the court challenges program has become a political football, subject to the ideological whims of the political party in government, but the rights of Canadians can be infringed no matter which party is in power. It was actually a Liberal government that changed the unemployment insurance law that had caused my family to be discriminated against. It could just as easily have been a Conservative government, an NDP government, or a motion originated by the Bloc Québécois. To put it bluntly, discrimination can originate anywhere in the political spectrum.
In our situation, we were fighting for 11 weeks of parental leave. In terms of benefits, I lost about $6,000. On an individual basis, it would have made no sense for us to pay a lawyer more than $70,000 to fight the discrimination, unless we were independently wealthy or crazy, and I can assure you we are neither. But as with many other issues of disability, we knew there were other Marys out there, children who were born with such potentially fatal medical problems that their parents should have the right to choose whether they use the benefits while the child is still in hospital or at home. That's the beauty of the court challenges program: they only take on constitutional challenges that can affect many people across the land. As the umpire who decided our case, who didn't know we had funding through the court challenges program, said:
[Rollason] brought a deficiency to the attention of Parliament which, while it has since been remedied, he should not have to bear the costs of doing so in order to obtain the benefits to which he was entitled.
Unless this program is reinstated and retained, constitutional challenges will be something only the richest in society can afford. That's wrong. Discrimination cuts across all classes and incomes. I never would have dreamt I'd ever have my rights infringed upon. Our family simply became the victim of discrimination because a child was born and she had disabilities. It's sad to know that the future parents of a disabled child, or anybody with disabilities, may not have the court challenges program to turn to unless you help keep it. Like me, other Canadians could only be the birth of a child away from discrimination. Don't take away the federal program that helped us and all the Canadians who are in our situation, both myself and my daughter Mary and my family.
Thank you for your time and your attention.
I'm assuming you might have copies. There's also a brief from my wife, Gail MacAulay, that should be part of your package. I'd urge you all to read it. It's from mummy's point of view, and she's pretty straight to the point as to just what the brunt was that she faced when I was away.
Thank you.