Excellent. I'm very flattered by that.
Good afternoon, honourable committee members and enthused public servants.
My name is Justin Manuel. I figured I'd try to crack one joke. As a former political staffer, I definitely relate to how exciting some of these meetings can be.
Today I'm here on behalf of Parkinson Canada. I'll just briefly go over what Parkinson's is and some of the budget priorities that we have for this year that we'd like to see in next year's budget.
As I'm sure some of you know, Parkinson's disease is a neurodegenerative disease of the brain that impacts almost every aspect of daily living, including movement, mood, speech, ability to smell, eating, drinking, and sleeping, and it can cause other cognitive changes. There is currently no known cure for Parkinson's disease.
Parkinson Canada recommends that the Government of Canada immediately commit to developing a Canadian action plan for brain health, with the primary aim of improving the life experience, productivity, and prosperity of over 100,000 Canadians living with Parkinson's and over four million Canadians living with a brain condition, as well as their families.
For planning purposes, Parkinson Canada has estimated core costs of a Canadian action plan for brain health over three years, from April 2017 to March 2020, by areas of expenditure.
The first one is to establish both a Canadian brain council and brain summits. The brain council, once established, would develop the Canadian action plan for brain health, including, in year one, developing a national dementia strategy. The council would also convene a brain summit in 2017, and a second summit in late 2019 or early 2020, to obtain input from the widest range of stakeholders possible. We estimate that the cost associated with this would be about $3.5 million over three years.
The second one is to engage in more epidemiological research and data collection. The Canadian brain council would review the findings about research gaps and data needs from “Mapping Connections” and other sources, and recommend, if the evidence supports it, expanded data collection, the creation of a new Canadian data collection survey for brain conditions, and funding needs for targeted research on risk factors for brain conditions. The expenditure for this would likely occur in years two and three, and the estimated cost associated with this is $22 million over three years.
The last one is to engage in investigator-driven basic research through organizations such as CIHR. Far too little is known about the causes, prevention, and treatment of most brain conditions, such as Parkinson's. Thanks to research, innovative therapies are available for some brain conditions. Unfortunately, many others remain untreatable.
Canada needs to invest more in basic brain research. Parkinson Canada believes that this is best done by increased annual funding to investigator-driven brain research through CIHR at a rate of $150 million per year.
That's everything.