Thank you, Mr. Chair.
I would like to thank the children and the parents. I know that being here today has meant a lot of time and energy, as well as a willingness to tell us the story of your lives. When children have a disease, it affects the whole family. We know that day-to-day living is not easy for these families, as we heard this morning. They chose a good way to reach us, describe their everyday experiences and explain how they live with this illness and the diagnosis.
You have raised this issue with several governments—not just the federal government for research, but also other governments for school protocols. This morning, one girl told us that it is not easy for her to do her tests and take her medicine at school and she talked about her teachers' understanding of the disease. Although I realize that this matter falls within the purview of the provinces, including Quebec, I would like the children to tell us what kind of standard protocol they would like to see to provide guidelines for supporting children in terms of their treatment.
I have a second question. Earlier, I asked Ms. Goulet what she thought the best question to ask would be. I think she answered in part or perhaps in whole: What would you do with more money, and what would it enable you to accomplish?
I am not sure I understood your remarks, but it seems to me you said you would like to see legislation on research. Did I understand correctly, or did I misinterpret because people around here are always talking about legislation? I may have misunderstood your remarks, but I think you said something about research legislation or spending more money on research. I think you were saying we need to spend more money on research.