In Ontario, there is a Citizens' Council. The Citizens' Council has explored the issue of rare diseases and has made recommendations on how we should make funding decisions concerning treatments for rare diseases. I suggest you look at that approach that is taken there. They have recommended an approach that is very similar to the approach that has been adopted in Ontario by the drugs for rare diseases working group. It's recognizing the special case of rare disease, but it's not as straightforward.
On April 16th, 2013. See this statement in context.