Evidence of meeting #85 for Health in the 41st Parliament, 1st Session. (The original version is on Parliament’s site, as are the minutes.) The winning word was drugs.

A recording is available from Parliament.

On the agenda

MPs speaking

Also speaking

Durhane Wong-Rieger  President and Chief Executive Officer, Canadian Organization for Rare Disorders
David Lee  Director, Office of Legislative and Regulatory Modernization, Policy, Planning and International Affairs Directorate, Health Products and Food Branch, Department of Health

4:45 p.m.

Liberal

Hedy Fry Liberal Vancouver Centre, BC

That's a good point you make. We always tend to look at major centres of excellence in cities and tertiary centres tied to universities, and in some instances we may need to look at centres of excellence in rural areas as well. I don't know if that's something that you're thinking of, Mr. Lee, so that we don't only look at these centres of excellence, especially in rare diseases, being in universities or—

4:45 p.m.

President and Chief Executive Officer, Canadian Organization for Rare Disorders

Dr. Durhane Wong-Rieger

Many of these are in fact virtual centres. If I look, for instance, at the hematological and rare blood disorder centre, while it's housed in Spain as one hub, it is fact a virtual centre. The collaboration in that case is from right across Europe. So there isn't actually a bricks and mortar site specialized just for that. They're different, special areas. Some testing, some diagnosis, some research is done at different sites, but they collaborate virtually. So it makes a rural site very feasible.

4:45 p.m.

Conservative

The Chair Conservative Joy Smith

We're virtually out of time.

I just want to thank both of our guests.

Dr. Wong-Rieger, all of your comments were extremely insightful, as were Mr. Lee's. This is a very important topic because it's such a small population. So the committee wanted to hear from you both.

Your idea about innovation and doing it virtually across the country.... I mean, we're in the day now of the Internet and things like that, which can assist us.

So thank you very much.

4:45 p.m.

President and Chief Executive Officer, Canadian Organization for Rare Disorders

Dr. Durhane Wong-Rieger

Thank you so very much.

4:45 p.m.

Conservative

The Chair Conservative Joy Smith

The committee is dismissed.