Thank you, Madam Chair.
I want to thank our guests for joining us.
As it is stated on the Orphanet website, “There is no disease so rare that it does not deserve attention”.
Dr. Wong-Rieger, we know that 80% of those orphan diseases are linked to genetic factors. You also said that Canada is a leader in genome research, but it has unfortunately not been able to use that technology for a prevention or treatment program.
Why has Canada been lagging behind in that area even though we have world-renowned minds and scientists? As you said, we are almost 10 years behind the U. S. and Europe. Unfortunately, Canada now has to learn from that European and American Orphanet.