I found it very exciting that people who you think are “brain-dead” is the term that's used, or something along those lines.... I've heard of it before, and I thank you for bringing that to our attention.
I want to ask Dr. Innes a question as well. You mentioned diagnosis as the first step in managing the condition, and you explained how Orphanet is an international portal supported by CIHR. I was wondering if you could elaborate a little bit. How does the technology, the innovative data collection and the way Orphanet works, help diagnose rare diseases? You talked about this diagnostic odyssey people go through. Perhaps you could tell me how we can start using this innovation of Orphanet, especially with rare diseases, because there's not a lot of information about them to make sure that we get a proper diagnosis.
Could you explain that?