I'm sorry, but I don't have specific numbers or data points for you. I should clarify that Orphanet, although it had its origins in France, has been fairly ensconced throughout the EU for several years. Although we were the first partner outside Europe, many European countries have been inputting information.
The advantage to that for those of us in Canada who have to join is, among other things, to join Orphanet you have to have all the information available in your national languages. We're already well covered. Also you can imagine that information is there at least in many European languages, and now with Japan and Brazil and others coming on, other languages will be added.
There is a brief summary of essentially every rare disease. It's a moving target, but for the 3,000 to 7,000 known rare diseases, there are at least several paragraphs outlining the basic features of that disease. That's one. It's the encyclopedia of rare diseases. There are also databases for orphan drugs that are available, clinical trials that are going on, and access to registries.
For some of those things you didn't necessarily need Orphanet Canada per se. It's findable on the Internet. What Orphanet Canada has provided for Canadian physicians and Canadian patients is a list of where the clinics are in Canada that have expertise in these diseases, who the Canadian support groups are, the family support groups they can reach out to, what research projects are happening in Canada, and what registries you can participate in. That's the value added since we've joined.
We only launched in October 2012, so we've reached out through our offices to about 350 stakeholders. We're constantly trying to identify more. I think we have data on 70 of those live on our website so we have a long way to go, but we're gathering that information.