Thank you very much, Madam Chair.
Ms. Micallef, you spoke about the different levels of coverage in the provinces. When I think of health care in this country I think of the real discrepancies that exist from one province to the next in terms of the level of services that are available, as well as the coverage.
I wonder if you could give us some indication, perhaps from both organization's perspective, of what you're doing to help a family who has a child with a rare disease access treatment, resources, and supports, in the ways that you both talked about in your presentations.
Do you help coordinate support? Do you help communicate? You talked a bit in your presentations about how you have various registries set up, and so on, in order to do that.
How do your organizations help these families deal with a family member who has an identified rare disease?