Dr. Smylie was talking about aboriginal organizations having more control over data, so there's a great appetite for information and data, and control and access and protection of data.
First nations governments, organizations, have developed capacity and interest since 1980 in terms of how information is collected and used. In the eighties, the concern was around discrimination and stigma related to the identifier. That kind of information was largely outside of the control and use of first nations organizations and first nations people. The further concern was about the analysis and the use of that information.
Now, for example, with the First Nations Information Governance Centre, which does the regional longitudinal health survey, we have first nations governance over information and data. We have the OCAP principles, and we have much more capacity now and much more interest. It's not enough, certainly.
There are some regions that have partnered with provincial governments and organizations to look at ways to have data sharing agreements and to structure governance around data information related to health so that it's accessible to first nations organizations to use.
I think the difference is around the control and use and protection of data and information.