It's certainly a difficult issue. I would hope that if a patient is in a clinical trial, once that clinical trial is over, the pharmaceutical company would continue that medication to that patient.
I think it would be very difficult if that didn't occur. For the trial for delayed release cysteamine, we had four patients in Calgary undergoing it and they all continued the medication. After the trial was over, they were provided it by the company. I think it would be extremely difficult to justify from a pharmaceutical company's point of view to discontinue medication.
There's an extraordinary or extortionately high cost of medications based on the idea that research and development justifies it because of the few patients. I wish there was a mechanism whereby the economists got together and really dug down into the true cost and true profits and what was justifiable, rather than the companies charging as much as they possibly can to maximize profits.