Thank you very much.
Mr. Edwards, parents who have children with a rare genetic disease are often left to their own devices. They are told that there is currently no treatment coverage in Canada, and they then do their own research online. They realize that the costs associated with these drugs are high, that they are not covered and that, sometimes, they are only available in other countries. They have to buy them on the Internet, and they are at risk of receiving fake drugs.
What can we do to ensure that Canadians are more quickly connected to people doing research on different rare diseases?