Parents sometimes tell me that they have found a drug, but that it's only available in the U.S., that it isn't approved in Canada and that they can't get it here. They end up in somewhat difficult situations. No one puts them in contact with a specialist in the field in Canada or tells them who they could contact.
What could the government do to improve so that Canadian patients and researchers with expertise in Canada can be connected so that these patients receive information on clinical trials or on what has been done outside the country?