Try to help me understand this, too.
The testimony we received was that their daughter was responding very well to Cystagon. I understand it was under the special access program. The cost was $15,000 per year. Their family was compelled to transition to Procysbi, which costs $300,000 per year, and the only difference—it's the exact same molecule—is the coating that affects the time release of the medication.
To lay people sitting here, that sounds absurd and ridiculous. Why would we have a policy that drastically increases the cost of the medication for no real difference in therapeutic value and, in fact, maybe, from this family's experience, a diminution in therapeutic value? Help me understand that.