Thank you, Mr. Chair, and members of the standing committee, for having us come to speak today.
My name is Devon MacFarlane and I work as the director for Rainbow Health Ontario, which is a program of Sherbourne Health. Rainbow Health Ontario creates opportunities for the health care system to better serve LGBT2SQ people and communities. We do this through supporting clinical practice and organizational change, public policy work, catalyzing research and knowledge translation. Rainbow Health Ontario is unique in Canada.
We at Sherbourne are very excited that you've undertaken this study of LGBT2SQ health in Canada, and I am so pleased to be here at your opening meeting.
Today, I'll provide a broad overview of LGBT2SQ health and set the stage for my fellow speakers. I'll touch on the size and diversity of LGBT2SQ communities, health disparities facing our communities, causes and contributing factors, impacts on individuals and society, and actions that could contribute to positive change. We will submit an evidence-based brief that expands on these remarks. For brevity, I'll be using LGBT as an acronym.
Let me begin by painting that broad picture. The image that often comes to mind when we think about LGBT communities is of young, white, fit gay men at pride events. However, our communities are very diverse. People live in big cities, small towns, on and off reserves and up north. Our communities include small children through to people in their nineties and beyond. We're from all cultures, ethnicities, races and faiths. Our communities include francophones, people with a broad range of mother tongues, and newcomers, including refugees. Our communities also include people who are homeless, poor, middle income, and high income.
Rainbow Health Ontario uses an estimate that about 7.3% of the population identifies as lesbian, gay or bi and 0.6% identifies as trans. In Canada, that translates to about 2.9 million people. There are yet more people who may not have that identity but engage in same-sex behaviours.
The best available health data points to clear disparities for LGBT people, some of which are not obvious. We see higher rates of cancer and problematic substance use, and among lesbians and bi women, higher rates of chronic diseases, such as cardiovascular diseases, asthma and arthritis. There also seems to be an earlier onset of some chronic conditions. Not surprisingly, given the increased prevalence, we also see precursors, such as higher rates of cancer-related risk behaviours. There are also higher rates of dental problems, and of pregnancy involvement among LGBT youth. Then, of course, there are STIs, HIV and mental health and suicide, which are what most people tend to think about around health in our communities.
In short, in any area of health and health care, including palliative care, pharmacare and the opioid crisis, there are likely issues for our communities. However, nothing inherent to our identities causes these disparities. To consider possible policy interventions, we first need to look at contributing factors.
LGBT people experience familial and societal rejection, higher rates of childhood sexual and physical abuse, violence, stigma, prejudice and discrimination. Many members of our communities also experience other forms of discrimination, such as racism, which add to their stress. If you've been openly discriminated against by your family and others, attacked for who you are or experienced discrimination in employment, it's no wonder that you might be dealing with depression, anxiety, PTSD and suicidality. Many cope through substance use, including smoking, as self-medication.
Of course, we have lots of areas where there's also resiliency, but in this case, we need to be looking at disparities. Trans youth in Canada, for instance, who don't have family support, and have experienced other forms of discrimination, have a 72% chance of making a suicide attempt in a 12-month period. Youth with strong family support, however, and who experience no other forms of discrimination, have just a 7% chance. Across the lifespan, 45% of transpeople, almost half, have made at least one suicide attempt.
Experiences in accessing health and social care and barriers to clinically and culturally competent care contribute to health disparities. Canada's health care workforce is vast. Most providers have not had any content on LGBT health while in schools. While most providers are well intended, they don't know clinically what to do and what not to do. This results in many people not being out to their health care providers or avoiding care altogether due to previous experiences and fears of discrimination.
In particular, lesbians, bi and transpeople have been found to have a range of unmet health needs. Transpeople have specific concerns, due in part to wait-lists, due to not all required interventions being funded and due to an extremely limited number of providers and agencies that have the knowledge, skills and desire to serve them.
There are also exponential increases in the number of transpeople seeking care. For pubertal trans kids, access to puberty-blocking medications is particularly time sensitive, yet the clinics who serve them are struggling to keep up with the demand and often can't see them for many months while changes are happening in these young people's bodies.
LGBT seniors face specific needs and issues, including in end-of-life care. They are more likely to be aging alone and are less likely to have family or friends who can provide care they may need, and they may struggle to identify a substitute decision-maker. Mistrust in the health care system is significant. LGBT seniors grew up in an era when being gay was a criminal offence, as well as being considered a mental illness. Some were institutionalized and subjected to electroshock therapy.
Although many younger seniors have been out their entire lives, they are afraid that they'll have to go back in the closet to access care. A study found that one-third of LGBT home care users were afraid that their home care providers wouldn't touch them if their sexual orientation or gender identity were known.
Health disparities and impacts of discrimination lead to worse outcomes at the level of the individual as well as Canadian society. This includes outcomes in terms of life expectancy, disability-adjusted life years, or DALYs, loss of economic contributions and avoidable health care costs.
For instance, a U.S. study found a difference of 12 years of life expectancy for LGB people living in welcoming and affirming regions versus hostile regions of the country. Both human and economic costs are huge. When we look at disability-adjusted life years for LGBT Ontarians, over a thousand extra years are lost every year just due to mental health and three specific forms of cancer. In Ontario alone, this translates to an annual loss of GDP of between $11 million and $33 million.
While the health disparities and barriers to competent care are significant, action can be taken to create positive change, both directly to health care and also in relation to determinants of health. For determinants of health, action could include—and we would recommend that action be taken on—increasing support for families to enable them to better support their LGBT loved ones; addressing hate crimes, violence and discrimination that target LGBT populations; and addressing LGBT issues in housing, homelessness and poverty reduction.
Specifically in health care, action could be taken in any federally led health programs, services and initiatives, ensuring that LGBT issues are addressed; making provision for LGBT health in transfer funding and agreements and encouraging provinces and territories to meaningfully address LGBT health; generating commitments and mobilizing health care organizations to address LGBT health care disparities and barriers to care, and ensuring equitable access to care that is both clinically and culturally competent; skills development for health care providers, recognizing that we have a very large health care workforce, most of whom could be more effective given the opportunity; funding for LGBT-specific chronic disease prevention initiatives, including robust evaluation and knowledge translation; and, ensuring that transpeople across the country can get access to needed transition-related care in a timely way.
ln research and monitoring, we would recommend building on the new StatsCan unit and Canadian Institute for Health lnformation's work on equity measures, ensuring robust data collection and reporting, including for health care administrative data; monitoring progress on LGBT health, and health outcomes, including disability-adjusted life years and potential years of life lost and the associated economics costs; significantly increasing funding for LGBT health research, with a focus on population health, improving clinical care, improving health systems, and the impact of interventions. Within this, there need to be significant focuses on lesbian, bi, trans, and two spirit people, and especially on parts of our population who are racialized, newcomers, francophones, and people living outside of major urban centres or who are experiencing poverty.
ln closing, we at Sherbourne are pleased that you are embarking on this study. It is fantastic. The study and any actions taken could have far-reaching impacts. Addressing health disparities for LGBT people is one of the next major frontiers in our work to build an equal and just society where all can healthily participate and contribute.
By building on our human rights successes, Canada could be poised to be a world leader on LGBT health.
Thank you for your attention and for your work on this front.