Thank you so much, Adele and Monique, and thank you for the question. It's an excellent question.
Two years ago I was at the international AIDS conference in South Africa. We were at the disability networking zone, doing a presentation. The sign language interpreter in South Africa had never heard of episodic disability, so she asked me if I could define it. Of course I shared the long definition that we all give and then when I was speaking and she signed it, I asked her what sign she used. She said she used an illness or condition that comes and goes and whatever the sign is for unpredictable. Those were the three criteria she used: a long-term illness or condition that comes and goes and is unpredictable.