The reaction to my presence is for the most part quite welcome. The people in the albinism community are absolutely thrilled every time I and my team arrive in Tanzania.
I remember the very first time I arrived there, about two years ago. There were tears rolling down the faces of most people with albinism. They were suffering, and they were alone. They didn't think anybody in the world knew about their plight or cared about them.
I need the committee to understand that I have a very personal connection to this. Although I'm not Tanzanian and I'm not African, these people and I share the same genetic code. When I would come over, look them in the eye, and say, “I'm your brother”, they would get it. The fact that a person with albinism would take the effort to fly halfway around the globe, look them in the eye, hold their hand, and hear their stories meant a lot to them. I have tens of thousands of brothers and sisters in that country who celebrate my arrival.
With respect to the government, the reaction is mixed. Some are pleased to greet me and are cordial and kind. Somehow I get the doors of power opened to me every time I show up. Whether it be the Prime Minister, the chief justice, or cabinet ministers, they all take my calls and meet me. I think to some degree that's because of international media pressure and international governmental pressure. They want to be seen to be doing something. They want the media coverage. They know that the media are following me everywhere, and if they turn down my invitation to talk to me, that will be noted in the local media and it won't look good for them.
So most politicians are kind and polite and listen to me--and then I go home and they don't do as much as they need to do.