I'm eager to read the report.
You have extensive clinical experience. Do you often come across situations where the parents and child disagree on what is in the child's best interests given the progression of the illness? Making those decisions is definitely a process because measures can't be put in place overnight.
In your extensive clinical experience, do you come across many disagreements, or does the decision-making process tend to be healthy, such that the parents and child are in sync regarding the child's best interests?