Again, we were grateful to be invited here by you to share our experience with the suffering and death of a child.
When Markus was 17 and diagnosed on February 26, we were driving back to our home from the Vancouver, B.C., children's hospital. He said to us, “Mom and dad, this cancer sounds really bad. If they don't get it the first time, I might as well just go home to die, because there's no chance.” He understood from day one that this was terminal, yet all of his treatment was focused, first of all, on a cure, yes, and then, when it morphed into treatment for quality of life, it all emphasized the value of his life, no matter how sick he got and no matter how incapacitated he became. That is our experience. We're grateful to share that.
I would suggest that if you would like to hear from people who have different experiences, you need to talk to them.