Thank you very much for your question. May I answer in English? It's easier for me.
Thank you very much.
I think this is a really important issue. There are two aspects that come to my mind. I had the opportunity in the past to write, with a colleague of mine, guidelines for neurologists about genetic testing and Parkinson's disease. There are two issues, as follows.
First, as Joyce just said, the key question is if we learn genetic information, how does it change our management? How does it change our communication? The problem in Parkinson's disease is very similar to what it is in Huntington's disease: unless we have a new strategy and a new way to treat the disease differently, sometimes having information, in and of itself, can increase anxiety and add to difficulty, including, then, issues of confidentiality.
So we are not yet in a position to drastically change our management and how we care for patients with Parkinson's disease when we have additional genetic information. As a researcher, I always want to know what the genetic problem is in an individual. As a caretaker, as a physician, I have to respect that if I can't necessarily utilize that knowledge, I have to respect the dangers and the complications and the problems, both medical and non-medical. At the same time, it's very important to encourage people to participate in studies to find out more about the genes. That can be done anonymously so that the information doesn't necessarily get back to the participant.
Second, any time we consider genetic testing, it is done as a team, with genetic counsellors and experts, to prepare the families and the patient as to what potential things to consider and how it potentially changes the future.