Thank you once again, Madam Chair.
I have three points, and I say these from my view as a caregiver. I think my pipe dream for Parkinson's, if there is one, is that it be identified as a chronic disease, the same as heart disease, diabetes, and those types of things.
I would like to see more funding for care in the home. My biggest regret is that my husband had to pass away in a nursing home. So I echo Mr. Sherwood's view on that: palliative care in the home is what everyone wants.
I would like to see more opportunities for families to take advantage of respite care. By that I mean respite care where the care home or the care facility is very familiar with Parkinson's disease and the importance of getting medication on time. I know that the few times I took advantage of respite care, I could only equate it to putting your dog in a kennel and when you get your dog back it's a mess, because that's what happened every time my husband went to respite care. His medication was so upset that it took weeks to get it regulated again.
So I think respite care is a big issue, but it needs to be quality respite care.