Let me make a very brief comment. Arguing by analogy with cerebral palsy, there is a surveillance system in Europe called SCPE, the Surveillance of Cerebral Palsy in Europe, which has been operating for more than 10 years and which involves several countries, and it involves some of the elements that Dr. Elmslie talked about. It is an excellent model for how this can be done.
On December 14th, 2010. See this statement in context.