Evidence of meeting #3 for Subcommittee on Neurological Disease in the 40th Parliament, 3rd Session. (The original version is on Parliament’s site, as are the minutes.) The winning word was research.

A recording is available from Parliament.

On the agenda

MPs speaking

Also speaking

Yves Savoie  President and Chief Executive Officer, Multiple Sclerosis Society of Canada
Denis Baribeau  Representative, Social action and government relations for Quebec Division, Multiple Sclerosis Society of Canada
Joan Ozirny  Chair, Government and Community Relations Committee, Alberta Division, Multiple Sclerosis Society of Canada
Laurel Radley  As an Individual

May 6th, 2010 / 8:20 a.m.

President and Chief Executive Officer, Multiple Sclerosis Society of Canada

Yves Savoie

This is the date on which we will announce the results of our CCSVI research competition, which was launched early in the new year. On June 14, after the review by a panel of experts--vascular surgeons, interventional radiologists, MRI specialists, and neurologists--we will be announcing a series of research commitments to CCSVI research.

8:20 a.m.

Conservative

Patrick Brown Conservative Barrie, ON

I know the concern. I think Laurel mentioned it, that there wasn't the perspective of vascular surgeons on that committee. Are the perspectives of vascular surgeons being considered?

8:20 a.m.

President and Chief Executive Officer, Multiple Sclerosis Society of Canada

Yves Savoie

Absolutely. Ms. Radley is correct that there has not been a vascular surgeon on our medical advisory committee.

The recommendations for funding of research applications come through panels that are assembled for various competitions. In the context of the CCSVI competition, obviously that panel was assembled with the expertise that is relevant to that kind of research, and I note as well that we were the first to launch a competition.

Our sister organization, the American MS society, launched a similar competition, and we have assembled a joint panel, an international one that includes European expertise and expertise from both the U.S. and Canada. The experts that do the review are not applicants, so they're not conflicted.

8:20 a.m.

Conservative

Patrick Brown Conservative Barrie, ON

That's encouraging to hear. I heard the same concern that Laurel mentioned from that doctor. He's concerned there wasn't any perspective being taken into consideration from vascular surgeons, and obviously it would make sense that their input be considered.

The panel looking at this is comprised of a group of doctors?

8:20 a.m.

President and Chief Executive Officer, Multiple Sclerosis Society of Canada

Yves Savoie

Absolutely. The list is on our website, so it's public information. I don't have it here. There are about 20 people, I would say. It's a large group.

8:20 a.m.

Conservative

Patrick Brown Conservative Barrie, ON

Okay. That panel is specifically created to look at this?

8:20 a.m.

President and Chief Executive Officer, Multiple Sclerosis Society of Canada

Yves Savoie

To look at the requests from both the American and Canadian research competitions in MS. Sorry, it's CCSVI.

8:20 a.m.

Conservative

Patrick Brown Conservative Barrie, ON

You talked in the beginning about the desperate need we have for a national strategy on the brain. I think one of the neat opportunities we have with this committee is that we're looking specifically at neurological disorders. I've heard many times that if we see breakthroughs in research in one of the major neurological disorders, it's potentially going to help all the interrelated neurological disorders.

What opportunities do you see for synergies among all the groups with neurological disorders?

8:20 a.m.

President and Chief Executive Officer, Multiple Sclerosis Society of Canada

Yves Savoie

Let me just speak to one area. We talked about dementia. We talked about the very important work of the Alzheimer Society, and they play a very important leadership role in understanding the impact of dementia and loss of cognitive abilities. The reality is that in MS there are also associated issues of cognitive loss and depression.

These questions about those impacts--impacts obviously in terms of personal quality of life, impact on the family unit, on caregivers--are common. You'll readily see that while in MS, it is not one of the symptoms we will speak about first--we'll speak about fatigue, loss of mobility, loss of sight--these other symptoms are also real for many people. That's where those parallels are very important.

For instance, if you think of research on models of care other than the biomedical research, the commonalities there are just incredibly promising in terms of advancing approaches to housing, to our health system, the delivery of services. That's just one example.

There are many examples, including obviously some approaches that are about the medical aspects. Stem cell research has the opportunity to regenerate lost nerves in Parkinson's, in Alzheimer's, and in MS. In this city, there have been experimental treatments in stem cell research. There is lots of excitement about those avenues. There's another area of potential collaboration. We're really excited about the collaboration across the major neurological health charities.

8:25 a.m.

Conservative

Patrick Brown Conservative Barrie, ON

As we look at developing a national strategy on the brain and if this committee down the road was to prepare a report, what do you think is the most important thing to be included from the MS perspective? If we have a national strategy on the brain, specifically with regard to MS, what do you think is of the utmost importance for us to highlight?

8:25 a.m.

President and Chief Executive Officer, Multiple Sclerosis Society of Canada

Yves Savoie

I would tell you that the most important thing is really to mobilize the Government of Canada's role in funding research at a much increased pace—much increased pace. Our long-term recommendation is for an 80% increase to the budget of the CIHR—that would bring it to $1.8 billion—because that is fundamental to accelerate the translation of discovery into improved health for Canadians.

8:25 a.m.

Conservative

The Chair Conservative Joy Smith

I'm sorry, Mr. Brown, your time is up.

I want to thank the witnesses very much for coming and giving your testimony.

We just have a few things on this topic that we have to discuss before we go into our next health meeting, which is a two-hour health meeting. So I'm going to suspend this meeting. I'm going to ask that we go in camera.

Thank you to our witnesses again.

Go ahead, please. We're running out of time.

8:25 a.m.

NDP

Megan Leslie NDP Halifax, NS

Madam Chair, before we suspend, as this is a neurological disease subcommittee and we'll be looking at all the neurological illnesses, I was wondering if we could ask Mr. Savoie if he could provide us with information about what the groups are doing together. I think it would be very helpful for us.

8:25 a.m.

Conservative

The Chair Conservative Joy Smith

That would be very nice. Thank you very much, Ms. Leslie.

8:25 a.m.

NDP

Megan Leslie NDP Halifax, NS

Are you able to?

8:25 a.m.

President and Chief Executive Officer, Multiple Sclerosis Society of Canada

Yves Savoie

We'll do that through the clerk.

8:25 a.m.

NDP

Megan Leslie NDP Halifax, NS

Thank you.

8:25 a.m.

President and Chief Executive Officer, Multiple Sclerosis Society of Canada

Yves Savoie

Thank you.

8:25 a.m.

Conservative

The Chair Conservative Joy Smith

Good day, and thank you.

We'll suspend for two minutes, please. We should have some time to go in camera.

[Proceedings continue in camera]