Thank you, Mr. Chairman, Madam Clerk and members of the committee.
I also thank you for the invitation to appear before you today. I am speaking today as a professor-researcher, and mainly on the issues relating to my research.
First of all, I will tackle the state of our acknowledge: what do we know about health, about health issues in a minority environment? How do we find that knowledge? What issues are connected to the production of knowledge on these issues? And finally, what are the best means or why is it necessary to develop a research infrastructure that will allow the continuous documentation of the needs connected to this problem?
What do we currently know about the health of francophone communities living in a minority situation? We know that these communities are spread across the entire country, with a more significant concentration in Ontario and in New Brunswick. We also know that they present a diversified profile, according to their demographic or socioeconomic context. The data will reveal that members of francophone communities are generally older, have less formal education and are fewer in number on the labour market. Francophones living in a minority situation are more concentrated in regions where the economy is more unstable, making it more difficult to develop and access social resources.
The revision of the Official Languages Act in 1988 committed the federal government to support the development of English and French minority communities in Canada, and to promote the full recognition and use of French and English. The importance of language takes on a particularly significant dimension when it is a matter of health. The ability to understand and be understood is critical to the effective relationship between health care professionals and users of the system, and access to health care services in one's language is an essential component to the improvement of people's health conditions and quest for healthy living.
Several recent articles and reports have described the challenges and problems that the francophone population outside Quebec faces in terms of health. One Health Canada publication describes the negative effects of the language barrier on access to health care services, on the quality of the care and on health itself.
Despite universal access, users of the health care system who cannot communicate in their language do not have the same access or the same quality of care as their fellow citizens. The language barrier limits the use of preventive services, limits access to all services that require communication, particularly mental health, rehabilitation and social services, as well as adequate follow-up of patients, which in turn contributes to the increase in emergency services and the use of supplementary medical examinations to compensate for difficulties in communication.
For example, a study coordinated by the FCFA, the Fédération des communautés francophones et acadienne, showed that French language health care services are three to seven times less accessible to francophones living in 71 regions of Canada where they live in minority situations.
The few analyses undertaken on the group of Ontario francophones who participated in the National Population Health Survey in 1996-1997 support the hypothesis that there is a different state of health for francophones and that for this group, certain health care determinants play a bigger role. Even though the differences are not major, francophones in Ontario would be in fewer numbers to state that they are in very good health, but in larger numbers to state that their activities are restricted, that they have chronic health problems, to score higher on the stress scale and are apt to be taking more medication. Also, a significant percentage of users say that they cannot get the services they need.
Therefore, these disparities are poorly documented and have not yet been the focus of rigorous assessments of health care policies and programs.
In an effort to better understand—and you will see a few of the results I will be talking about on the slide show that will be presented—our team, which comes from a partnership between Statistics Canada and researchers at the University of Ottawa of which I am one, tried to establish if the fact of living in a minority situation can be considered a determinant of health. I am sorry, I did not say where I am from. I am also with the Institute of Population Health Research at the University of Ottawa.
We tried to establish whether living in a minority situation could be considered a determinant of health. With the cooperation of the Statistics Canada Health Analysis and Modelling Group, we combined the Canadian Community Health Surveys of 2001 and 2003, in order to have the largest sample possible, which often poses a problem when conducting secondary analyses.
Our objective was to assess the link between living in a minority situation and self assessed health satisfaction, a variable of perception that is closely linked with the objective situation. In research, this variable has a widely accepted scientific validity. Therefore, we can use it without concern about overly influencing the results. We introduced four blocks of variables related to lifestyle, socio-demographic data, in context to life and inabilities. We hypothesized that living in a linguistic minority situation, despite the principles of universality and accessibility of Canada’s health care system, would negatively influence the perceived state of health. The results show that based on age, Francophones living in a minority situation were more inclined to declare poorer health than Anglophones in a majority situation, both for men and women.
These results raise an important point that has never been explored in the Canadian context of official languages. Health publications have amply demonstrated that age, sex and income are the main determinants of health, but living in a minority situation has never, until now, been documented. These results, in addition to observations and initial studies on the matter, which confirm a different health situation negatively affecting francophone minority communities, underscore the importance of probing deeper and better understanding all the determinants of health.
The results also reveal the increased importance of conducting contextual or environmental analyses of health, allowing a better understanding between contexts, local settings and health.
The rapport between minority and majority seems to translate into a social inequality and unequal access to resources which, combined with other social determinants of health—socioeconomic status, education, literacy, age, sex and immigration—contribute, in fact, to the disparities in health.
This again poses a fundamental question that has been raised a number of times by lobby groups, that of linguistic duality and the inclusion of a sixth principle in the Canada Health Act, in terms of access to health care in both official languages as another requirement for federal funding.
Currently, the reforms are particularly favourable for reflecting on the organization of the services, as indicated by colleagues active in the field. But it is also important to document these realities and, in that sense, research is a necessary tool for doing so. Currently a number of obstacles are preventing research in this area. The marginalisation of this field of study, the difficulty in obtaining meaningful information, dispersal of researchers across Canada, and their affiliation with small universities that are often less competitive and offer few programs of study, make it even more difficult for professors to conduct research.
For two years, the joint research commission at the CNFS, the Consortium national de formation en santé, and the Société Santé en français, have been working hard on creating an environment conducive to the development of research, the promotion of networking and the support of thematic teams, to correct the inadequacies in the information on health, social determinants of health and access to services. To do so, the commission undertook to raise awareness among subsidized agencies such as the CIHR, the Canadian Institutes of Health Research, or the SSHRC, the Social Sciences and Humanities Research Council, about the importance of strategic research on official language minority communities.
This initiative was successful and resulted in the development of strategic competitions over the past year. I receive a subsidy, along with my colleague, Ann Leis, from Saskatchewan. Not only should these initiatives be maintained, but they also need to be enhanced because they give researchers the true means to produce the top notch research needed for a reliable analysis of the determinants and needs in health in a minority situation. It is through research that knowledge becomes useful to the decision makers and planners; it is through research that students are taught about realities and truly learn the job they will perform, we hope, with as much clarity as possible.
It is crucial for subsidized agencies and their partners to acquire lasting funding for an issue as important as the challenges of official languages in our Canadian context, in order to ensure continued production of top notch knowledge; to support the teams, research networks, and the succession; to implement broader studies that are representative of Francophones in a number of provinces. In that vein, I must point out the major limitations of the administrative data on health, which do not provide insight into the official language communities because the linguistic variable is never entered into health records. This is a problem that can be easily resolved; this information is essential in research for understanding where the inadequacies lie. The same is true for the national health studies that, without provincial oversampling, do not allow for very good studies in the different provinces. For example, in the Community Health Survey, only Ontario was oversampled. Studies may be done in Ontario, but is extremely difficult to get out of the Ontario context. Provinces should ensure that minority communities can be studied in national studies.
In fact, these shortcomings could be overcome if research in this area were taken seriously and given the means to make progress. The development of research infrastructure is, in my opinion, the best way to truly develop the ability to research sociolinguistic minorities and health, and a real network of teams of researchers with increasingly greater ramifications. This network will, thanks to the recruitment of young researchers and students benefiting from the mentorship of experienced researchers, consist in the experience of centres of research, and support from the network as well as the trust gained from initial successes and the results achieved.
A research network will also help mitigate the disparities in the ability to even conduct research; bring together researchers from different disciplines and different institutions; develop research programming; provide convincing results for developing policies; and ensure and support the succession. Connections between academic institutions, the health care environments and community partners could thereby be enhanced. This infrastructure will also help transform the environment of research on the health of francophone minorities, to allow the research teams to be competitive and obtain funding during subsidy competitions.
The synergy created by the team of researchers and partners involved in health in Canada will contribute to creating a corpus of scientific knowledge that is extremely useful for understanding the disparities in health and implementing structured interventions to better serve the francophone populations living in a minority situation, particularly the most vulnerable among them.
There seems to be no hesitation when it comes to funding research in genetics or genomics and creating centres of excellence without much benefit or results in terms of improving public health. Why should social research have to prove its relevance and importance in crucial matters and problems inherent to the Canadian situation in order to get such a small share of the funding?
Thank you for your attention.