That's terrific.
In drilling down, I'd like to look at the various pieces. Do you need a registry? What are the best practices? What do we need in terms of treatment, the range of treatment? I know long-term treatment is a real issue in this country and families are forced out of the country. The last piece would be research funding.
I'm just going to let you talk. Be as specific as you can. Say, ”Recommendation one, this is what we want: the registry, best practices, treatment, and research funding”.