When it comes to the funding for families, number one is trying to have everybody on the same page so that information can be delivered. But even in some situations, it's too much for a parent. I've had some families that just can't manage.
When they do receive funding, there are a lot of barriers and stipulations around it, and then there's the paperwork. I'll give you a scenario for the latter. A portion of the form for a disability tax credit, for instance, needs to be filled out by a doctor. You have a family that's already strapped for income; they go to get this filled out and it can cost them anywhere from $50 to $100. I've had families walk away because they cannot afford it. Furthermore, with a lot of these funding papers, a family also needs to provide documentation from their doctor, from their developmental pediatrician, or a psychologist, and there's also a price tag attached to that, which is a barrier. I've had some families that can't afford the doctor's note, or for the doctor to fill it out. Then they come back and we have to look at third-party funding. That's a whole new step and a lot of families don't have the energy and give up, meaning they have no access to that funding.
There's the time consumed with appointments. A lot of the treatment will happen as a block, and the demands will be such that maybe a couple of times a week, or weekly, a mother or caregiver will need to devote that time to the child. If they are trying to balance their work and caring for their disabled child, something has to give.