We've heard from the task force that the working group did include patient advocates; there were patients involved. However, we heard from those patients that their input was disregarded, that they were essentially window dressing and that they were asked to weigh in on things that were completely beyond their scope of understanding. It reads as a box-checking exercise. When we're talking about accountability and transparency, and the task force comes out and says they consulted with experts and patients, it's really just in name, not actually in function.
On October 9th, 2024. See this statement in context.