Thank you very much for the opportunity to make a representation this afternoon.
I'm the chief operating officer of The Perley and Rideau Veterans' Health Centre. We support over 250 older veterans, their caregivers and families, both in long-term care and in supportive living apartments.
Monday evening as I was leaving work, I had the opportunity to speak with the daughter of a veteran who was admitted to our long-term care home two weeks ago. The daughter had been supporting her parent, who has Alzheimer's disease, at home for several years. The daughter shared that she had failed her mother, first, by letting her fall while at home, and then in hospital as she deteriorated due to lack of physical and social activity. She was crying. The daughter was struggling with her mother's transition to long-term care, and the profound change this meant for her day-to-day life as a caregiver. Her caregiving role had not ceased, but was profoundly changed, aligned with her mother's transition.
Her story is but one of countless examples of families and loved ones who are caring for older veterans. How can we ensure these families and caregivers receive the support and services required to optimize their quality of life, and also that of the veteran whom they care for?
Families and caregivers are essential to the physical and psychosocial health of veterans. Indeed, they've often been described as the strength behind the uniform. This is true not only when an active member transitions to civilian life due to illness or injury, but also as veterans age and their capacity declines.
The needs of veterans and their caregivers are intrinsically linked. To support the veteran, one must support the caregiver. To support the caregiver, one must support the veteran.
In August 2017, the Office of the Veterans Ombudsman published its report “Continuum of Care: A Journey from Home to Long Term Care”. The report clearly articulated the need to ensure that aging veterans and their caregivers receive appropriate support across their life-course trajectory. The recommended changes were designed to help reduce complexity and enhance benefits and services to those who need them, when and where they are needed, while ensuring that eligibility was not tied to the veteran's status or location of residence. Benefits and services should be flexible enough to move and adapt seamlessly with the veteran as the needs and care settings change.
Required improvements to services and supports for veterans, their caregivers and families can be grouped into three broad themes: close the gap, enhance outreach and reduce complexity.
With regard to closing the gap, Veterans Affairs has a long tradition of supporting priority access to long-term care for veterans of World War I, World War II and the Korean War. Additionally, the department needs to support veterans and their caregivers to remain in the community as long as possible through the veterans independence program. This program provides annual funding to eligible veterans to help cover the cost of home care services, and it is an excellent support for those with limited needs who are capable of independently navigating a wide variety of service providers.
Unfortunately, there's often inadequate support for veterans and their caregivers as their needs change and remaining at home is no longer an option. The burden of care falls to families. Accessing long-term care is challenging, particularly so for those who served following the Korean War. It's not just access; it's about quality care.
Veterans Affairs must shift its focus to the continuum of care, aligned with the diverse life-course trajectories of veterans. Families and caregivers should have confidence in access to quality services based on need, whether that be in the community, a supportive or assisted living environment or long-term care. This should include support for caregivers when veterans are unable to perform instrumental activities of daily living, such as household management and child care.
In terms of enhancing outreach, as veterans age, family and caregivers age with them. Navigating health and support services is challenging for the most privileged among us, but it is particularly difficult for those with declining cognitive capacity and for those who aren't comfortable with technology. It's too easy for veterans and caregivers to fall through the cracks.
It's essential that Veterans Affairs enhance its outreach programs and communications. This can be accomplished through systematic and planned reassessment of veterans at risk and by partnering with established veterans service organizations to ensure awareness and organization of appropriate supports.
The veterans health care regulations are notoriously complex, with benefit eligibility often tied to type of service. In addition, federal supports and services are often layered upon provincial and municipal programs. Care is frequently fragmented, and negotiating and managing services on behalf of the veteran can be overwhelming and exhausting.
Access to a continuum of care and support must be as seamless as possible, ideally with a single point of entry. Eligibility criteria should be clear and equitable—that is to say, based on physical and psychosocial needs rather than type of service.
In conclusion, it's important to note that very little research has been conducted that examines the trajectories of older veterans and their families. A deeper understanding of the journey lived by older Canadian veterans, their families and caregivers would enable the development of more tailored supports and services.
Thank you for the opportunity to make representation on behalf of veterans, their families and caregivers.