The biggest thing is to assign caseworkers. This having to call in and never knowing whom you'll get.... I went through the same thing with my dad. Because he had dementia, I had to be his advocate, and it was exactly the same thing: Each time, we have to get a new person.
Not having a caseworker means that you have to go back over and over and tell them the same thing. That's part of the trauma. I've spent last 13 years or whatever doing exactly that: explaining who I am.