Mr. Speaker, today I would like to raise awareness about EB. EB refers to epidermolysis bullosa, a group of rare and devastating genetic diseases characterized by extremely fragile skin and recurrent painful blisters. To date there is no cure for EB.
Despite the physical limitations that can be caused by EB there is no impairment of intelligence. Many EB sufferers excel at work and in the classroom.
The Dystrophic Epidermolysis Bullosa Research Association of Canada, also known as DEBRA, is seeking to develop a national registry of EB sufferers, raise awareness of the disease and encourage Canadian research into EB. Many of the problems of EB sufferers can be overcome with the support of a well informed and caring community.
For this reason I seek to bring attention to EB and encourage research and efforts to care for those who suffer from this devastating disease.