Mr. Speaker, I rise today to bring to the attention of the House EB Awareness Week which is being recognized from October 25 to November 1, 1999. EB refers to epidermolysis bullosa, a rare genetic skin condition that affects children regardless of race or gender.
The rarity of the disease combined with the lack of research and information has left many of the young sufferers feeling isolated and disillusioned.
Today I seek to raise the public's awareness of this devastating disease by applauding the efforts of DEBRA Canada. The Dystrophic Epidermolysis Bullosa Research Association of Canada is a charitable organization founded by a group of EB sufferers, their families and friends.
DEBRA Canada and its president Francesca Molinaro have been tireless in their campaign to raise awareness and further research into this rare disorder.
I encourage everyone to support DEBRA Canada in its goal to raise awareness of EB and provide support to all the children who suffer from this terrible disease.