With regard to Canadians diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): (a) given that the Statistics Canada Canadian Community Health Survey (CCHS) showed a more than 60% increase in Canadians diagnosed with ME/CFS between 2001 and 2005, (i) what, if any, funding has been allocated to research this illness in the last four years, (ii) how does the government propose to encourage Canadian research into ME/CFS so that the level of research into this complex, multi-system illness is commensurate with its extent and impact, (iii) what is the government doing to develop strategies and programs to meet the needs of Canadians with ME/CFS; (b) how is the government ensuring that health professionals are aware of the following documents, (i) the Canadian Consensus Document for ME/CFS (ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners) developed by an expert panel selected by Health Canada, so that this illness can be diagnosed consistently and accurately, (ii) the Canadian Consensus Document for Fibromyalgia (Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners), also developed by an expert panel, so that these illnesses can be appropriately and differentially diagnosed; (c) when will the government perform the following tasks in relation to the Consensus Document for ME/CFS posted on the Public Health Agency of Canada’s website, (i) improve the location of the document on the website in order to facilitate location of this document, (ii) post the French version of this document; (d) why is the Fibromyalgia Consensus Document not posted as a guideline on the Public Health Agency of Canada’s website; (e) what steps is the government taking to ensure that health professionals, patients, and the public have access to science-based, authoritative and timely information on ME/CFS; (f) how soon will the government post other information related to ME/CFS on government websites; (g) what is the government doing to ensure access to ME/CFS knowledgeable physicians and appropriate health care on a timely basis and how is the government working with the provinces, territories, professional organizations, educational institutions and other stakeholders to meet these needs; (h) how is the government working with stakeholders to deal with other needs of Canadians with ME/CFS shown by the 2005 CCHS including, (i) reducing the levels of unmet home care needs, (ii) reducing the levels of food insecurity, (iii) increasing the sense of community belonging experienced by Canadians with this condition; (i) how will the surveillance report on ME/CFS, prepared from analysis of data collected from the 2005 CCHS, be used to improve the situation for Canadians with ME/CFS; and (j) how will the government monitor the extent and impact of ME/CFS and these other conditions on an annual basis given that questions regarding ME/CFS, Fibromyalgia and Multiple Chemical Sensitivities were dropped from the CCHS after 2005?
In the House of Commons on November 19th, 2009. See this statement in context.