With regards to motion M-426 (rare diseases and disorders), in the name of Mr. Bell (Vancouver North), adopted by the House on May 6, 2008, since that time: (a) has the government acted on this policy and, if not, why not; (b) how much contact has the government initiated and had with stakeholder groups such as Canadian Organization for Rare Disorders to enact this policy; (c) what financial resources has been set aside for this policy; (d) what assurances can the government give Canadians with rare disorders that they have a right to and can access effective therapies and medications; and (e) what actions will the government take to make Canadians aware of this program?
In the House of Commons on September 14th, 2009. See this statement in context.