Mr. Speaker, I am very pleased to have the opportunity to speak in this debate on Bill C-384, An Act to amend the Criminal Code (right to die with dignity). I want to thank the member for La Pointe-de-l'Île for bringing it forward.
At the outset, I want to make it clear that I will be voting for this bill and that I support the right to die with dignity. This will come as no surprise to my constituents, since my support for such legislation is something I have made clear on many occasions, both before and after I was first elected.
I have heard from many constituents concerned about this issue and this particular bill. Here is how some expressed their concern. I am quoting from a letter I received: “There are many members of our community who live with disabilities, with terminal illness, with depression, and in various stages of physical or mental decline. They suffer and must not be pressured into feeling an obligation to die because they are burdens to others. They have a right to proper and adequate treatment, pain management, and compassionate end of life care. Euthanasia and assisted suicide, disguised as pain relief and meant to kill, have no place as optional treatment plans.”
I can agree with much in that statement but obviously not all. Any legalization of assisted suicide or voluntary euthanasia must not be about pressure. It must not be about making someone feel they are a burden to society or to their family. This is especially true for those with disabilities, those who are depressed or those with terminal illnesses. Treatment, care and pain management must be provided.
The fact remains that pain management does not stop all suffering. Palliative care does not ease all suffering. Despite the best medical treatment and care, some people still have an agonizing death. In those exceptional circumstances, I believe that allowing people the choice to end their own lives should be possible.
It is also true that protocols are now in place to allow this option for many people. Some call it passive or indirect euthanasia, describing the situation where doctors prescribe pain medication that places people in a coma and hastens their death. This is widely practised today in Canada but practised quietly, described by some as underground. It is often not directly acknowledged, which means it is available to some and not to others. The problem of legality also means that it is practised without real oversight. This is unacceptable.
Equally unacceptable to some people at the end of their lives is the practice of being sedated into unconsciousness and then denied food and fluids. Instead, they would prefer a clear personal choice for a dignified death. Like any piece of legislation, the bill before us today may not be perfect, but it is an important issue to debate and an important proposal to study. It is high time that it was on the legislative agenda of Parliament.
Sue Rodriguez, who in the early 1990s was living with ALS, famously asked the question, whose body is it, when she petitioned the Supreme Court for a physician-assisted suicide. She was ultimately denied in a close five-to-four decision. However, in February 1994, she did die at a time of her own choosing with the help of a physician. A police investigation resulted, but charges were never laid.
I remember that time very acutely because at the time I worked for the former MP for Burnaby—Douglas, Svend Robinson. Svend, everyone will recall, worked for years with Sue Rodriguez on the issue of physician-assisted suicide and was with her when she died. In my opinion, many acts of love and bravery were performed the day Sue died, by Sue, by Svend and by the anonymous doctor who assisted her. I was never prouder of Svend than when, at a press conference following Sue's death, he was asked if the highest duty of an MP should not be upholding the law and he responded that the highest duty of a member of Parliament is love.
I answered hundreds of phone calls in Svend's office after Sue's deaths, hundreds of moving, sometimes desperate, sometimes angry calls, but one in particular from a family investigated by the police for taking seriously a terminally ill loved one's questions about assisted suicide and euthanasia will stay with me forever. Just for discussing these issues in their family member's hospital room, they were reported to the police, who then visited them at their home. For some people the conversation is possible and results in the assistance they seek. For others, the conversation is not possible or results in other unacceptable consequences.
Palliative care and pain management are indeed issues related to this topic. We need to do more to ensure excellent palliative care is available to all. We need to ensure there is research and training in pain management. We know that when patients can be assured about those issues, most are relieved to know they will not suffer unduly. For many, that is all the insurance they need.
However, not all who have terminal diseases are guaranteed that they will not suffer terribly at the end of their lives and some of those people request assistance in dying.
Many opponents of dying with dignity note that the end of a life can be a time of reconciliation, when a strong sense of inner peace can be experienced, and there is no doubt about that, but it is also true that this is not always possible for every dying person. For some, there is no peace or reconciliation possible when they are subjected to terrible agony without the possibility of relief. In those cases, death may offer the only possibility of peace and reconciliation.
I believe it is possible to craft a law that works and provides appropriate safeguards. This has happened in other jurisdictions, in Belgium, the Netherlands, Luxembourg, Switzerland, and the states of Oregon and Washington.
Many people bring a theological perspective to this issue. Theologian Daniel Maguire has written extensively on the issue and he has said, “If you start out with the physicalist presumption, that only one's organic system can determine death in a way that is natural to humans, the discussion is stopped in its tracks. If however, you grant that it is natural for humans to deliberate about alternative possibilities and to pursue that course which commends itself to their reason, then death by choice can be discussed. It could in fact be seen as quite natural to humans whose distinctive dignity is their capacity for choice”.
He goes on to ask the question, “Why should disease, not the patient, have all the say?”
The legal perspective for allowing the right to die is also important to note. Supreme Court Justice Peter Cory's dissenting opinion in the 1993 Sue Rodriguez case should be remembered in this debate. He said:
The life of an individual must include dying. Dying is the final act in the drama of life. If, as I believe, dying is an integral part of living, then as a part of life it is entitled to the constitutional protection provided by s. 7. It follows that the right to die with dignity should be as well protected as any other aspect of the right to life. State prohibitions that would force a dreadful, painful death on a rational but incapacitated terminally ill patient are an affront to human dignity.
The bill before us is not about making the decision for others. It is about ensuring people who are dying have the ability to make choices about their own life and can exercise those choices with informed consent.
This bill talks about adult decision-makers who are lucid, those who are in physical or mental pain that cannot be relieved or those suffering from a terminal illness, those who have made the request twice, 10 days apart, freely and with full information from their doctor.
The bill provides that the medical diagnosis must be reviewed by an impartial medical practitioner with no personal interest in the death of the person. The bill gives the power to the patient to revoke the request at any time.
These are the reasons I am glad Parliament is finally debating this issue. I will be voting for this bill, and I hope it will proceed to committee where it can be studied in detail, where witnesses can be heard on its provisions and where improvements can be made as appropriate.