Mr. Speaker, I am honoured to rise in this House to speak to our opposition day motion. It is truly a historic opposition day motion that serves to realize justice for the victims of the thalidomide scandal and for their families.
We know that in 1961 the Government of Canada approved the sale of thalidomide as a safe drug to treat nausea in pregnant women. The drug had tragic consequences for many families. The government has never apologized for the devastation it caused. After decades of discussing compensation, it provided an inadequate one-time payment to survivors. Our motion calls upon the government to right the wrong and commit to support thalidomide survivors.
What is critical for us is threefold. One, we need the government to right the wrong and support thalidomide survivors in our country. Two, we need to recognize that drug safety is a clear federal responsibility. The federal government approved this drug as safe for use by pregnant women and bears the responsibility for the suffering of innocent Canadian families. Three, victims of thalidomide have waited for over 50 years to get the support they deserve. Canada's thalidomide survivors are considerably worse off than their peers in other countries. They need support and compensation now.
We know that this is truly a global tragedy. Approximately 10,000 thalidomide survivors were born worldwide. We may never know how many Canadian families were ultimately affected by thalidomide, but today fewer than 100 survivors are still alive in Canada.
Decades of dealing with the consequences of thalidomide have left survivors dealing with very severe and debilitating pain. In many cases, their health care needs exceed what provincial health care systems are able to provide. Fifty years of attempting to work around their limitations has taken its toll on them. Many survivors are now suffering from nerve damage and painful wear and tear of their bodies. This has caused enormous challenges for them, including loss of ability to use their limbs to care for themselves; damage to their spines and joints, which severely limits their mobility; limited ability to maintain employment; and dependence upon others for basic tasks, such as using the toilet, dressing, and preparing meals. The deterioration of their health has placed them in a precarious financial situation in which they are dependent upon aging parents, unable to work, and further losing their self-sufficiency.
While the Government of Canada began discussing compensation for families affected in the 1960s, the only support provided to the families to deal with their urgent needs was a small lump sum payment made in 1992.
We recognize today that we were pleased to see the government's support for our opposition day motion; however, in that support, we also expect a true understanding of the concept of righting the wrong. It involves not just an apology but financial compensation.
As the status of women critic, I work with advocates for disabled women and disabled women themselves. I am constantly struck by how disabled women in Canada face some of the highest rates of poverty, some of the highest rates of violence, and some of the highest rates of marginalization.
In fact, we know that as many as 75% of disabled women in Canada are unemployed. The average employment income for women with severe or very severe disabilities was only $17,459 per year in 2006. Obviously thalidomide survivors could relate to that experience. We know that disabled women in particular, but also people with disabilities more broadly, often face extreme housing insecurity. They are either unable to access affordable housing or the affordable housing that may exist is not accessible to people living with disabilities.
I have also come to know through my work that advocating for women, particularly women with disabilities, is particularly challenging, because organizations that represent the disabled are cash-strapped and often have to deal with major restrictions when it comes to applying for funds and grants to be able to continue their advocacy, if it is even allowed, which in many cases it is not, as we have seen under the current government.
There is no doubt that thalidomide survivors have fallen into the category of the severely disabled, but in order to understand what they went through, we need to recognize that their story has everything to do with the federal government having shirked its responsibility decades ago.
We know from other countries, including the U.S., that rigorous work was done to ensure the safety of thalidomide, and it became clear that it was not safe at all. However, in Canada, the same was not done. The same due diligence was not exercised by the federal government at the time.
Many women, who I am sure were very happy to know that they were pregnant, were told by their doctors, people they trusted, who in turn trusted others, that thalidomide would be okay, and they took it to deal with difficult symptoms during pregnancy. However, it is particularly disturbing that this chain of command went through the federal government.
The federal government had, and continues to have, a responsibility to ensure the safety of the pharmaceuticals that Canadians use. However, the government at the time shirked that responsibility. It is a simple, clear pinning of responsibility on the government, which failed to do the due diligence that was required at the time. Sadly, it led to devastating impacts.
This is very much connected to the issue of maternal health, which is an issue I have been very involved with as the Status of Women critic for the NDP. We are pleased to see that the government is supporting this motion, but at the same time on the broader issue of maternal health, we have seen the Conservative government failing many times to take a leadership role.
I will speak for a moment about the importance of supporting pregnant mothers, and mothers after they have had children, making sure that they and their children, whether babies, toddlers or grown children, are healthy.
The reality is that we do not see that kind of leadership and support from the current federal government. In fact, in Manitoba there is a cutting-edge program known as “Strengthening Families”, which focuses on the health of indigenous women, children, and families in 16 first nations in the province. Even though it has received accolades from experts in the field of maternal health and has made a marked difference for first nations in Manitoba, it is devastating to know that the government is willing to cut the program by the end of this fiscal year. Therefore, success, when it comes to maternal health, is clearly not recognized by the Conservative government and not valued, because if it were, the program would be extended.
Maternal health is an integral part of the discussion around thalidomide. It an integral part of the discussion on how we can move our country forward and ensure that women, children, and families are better off across Canada.
As we deal with these broader issues, I am honoured to stand here today with my colleagues. In particular, I want to recognize the leadership of my colleague from Vancouver East, who has stood up for these 95 Canadians and the so many more who, sadly, are not alive to tell their story. They need justice, and ultimately their families need justice, and Canada needs to see that justice as well.