Mr. Speaker, later this month, on February 29, we will mark Rare Disease Day. The day raises awareness of the estimated 2.7 million Canadians directly affected by over 6,000 rare diseases and disorders. That is roughly one in 12 persons. Of these diseases, 75% affect children, and 30% of those affected will die before their fifth birthday.
Speaking on behalf of a family affected by a rare disease called Alport syndrome, a rare genetic condition that leads to loss of hearing and kidney failure, I have seen first-hand the impact a rare disease can have on a family. I know the helplessness and the financial hardship parents can feel when facing an incurable condition that is affecting their child.
I want to thank the medical professionals and researchers who assist those affected by rare diseases and disorders every day.
On February 29, I invite all members to join me in joining the parents and families affected by rare diseases and having their voices heard.