Mr. Speaker, next Tuesday, February 28, marks Rare Disease Day in Canada. This day raises awareness of the millions of Canadians directly affected by over 6,000 rare diseases and disorders. That is roughly one in 12 Canadians. Seventy-five per cent of these diseases affect children and 30% of those affected will die before their fifth birthday.
Speaking on behalf of a family impacted by a rare disease called Alport syndrome, a rare genetic condition that leads to a loss of hearing and eventually kidney failure, I have seen first-hand the impact a rare disease can have on a family. I understand the pain and worry of facing an incurable condition affecting one's children.
This year's theme is research, and I want to take a moment to thank the medical professionals and researchers who commit their time, as well as effort, every day to help those affected by rare diseases. On February 28, let us celebrate their work that saves lives and hope that the next research discovery breaks new ground in curing the incurable.