Mr. Speaker, I rise today to speak to Motion No. 189 on organ and tissue donation. This motion calls upon the House to:
(a) reiterate its commitment to facilitate collaboration on an organ and tissue donation and transplantation system that gives Canadians timely and effective access to care, since every year more than 250 people, out of the 4,500 on waiting lists, die without receiving a transplant; and (b) urge the government to support national efforts with provincial and territorial authorities and stakeholders to increase organ and tissue donation rates in Canada through public education and awareness campaigns, ongoing communication and the exchange of information, including best practices.
Canada's New Democrats will be supporting this motion, because our party believes fervently that we must make every possible effort to ensure that every Canadian who needs an organ or tissue transplant receives it.
I would like to thank my colleague, the hon. member for Thérèse-De Blainville, for introducing this motion and for his passionate advocacy for organ and tissue in donation in Canada. It is also a pleasure to work with him on the health committee.
Canadians need urgent action to improve organ donation rates. At 20.9 donors per million people, our current donation rate puts us at the back of the pack among comparable countries. There are also significant variations in donor rates and programs across Canada. While some provinces, such as British Columbia, Ontario and Quebec, are considered centres of excellence in organ donation, others vary significantly in terms of the types of programs available. That's why, for over a decade, New Democrats have been working to create a pan-Canadian organ donor registry to better coordinate and promote organ donation throughout Canada. Legislation to create such a registry has been introduced by New Democrat MPs on five occasions: in 2002, 2003, 2008, 2009 and 2013.
ln February 2016, the Conservative member for Edmonton Manning, whose own son has been the recipient of three donated livers, introduced private member's legislation, Bill C-223, with the unanimous support of the New Democratic Party. Unfortunately, the Liberal government voted to block that effort. The Liberal health minister at the time attempted to defend her government's decision, saying, “This is a matter that is under provincial jurisdiction, and it is for that reason that the bill was unsupportable.”
Canada's New Democrats were profoundly disappointed to see the Liberals rush to that determination without even sending the bill to committee for review. Indeed, when the health committee subsequently agreed to study Canada's organ and tissue donation system, in March 2016, it was made abundantly clear that organ donation and transplantation is a shared responsibility between federal, provincial and territorial governments. ln particular, the federal government has a responsibility to facilitate national coordination to ensure that every Canadian who needs a transplant receives it.
As part of that study, the committee heard from a range of witnesses, including representatives from Canadian Blood Services, provincial organ donation and procurement organizations, researchers, health care providers and health charities. New Democrats hope that the committee's report, tabled earlier this fall, will place a renewed focus on the need for immediate federal action to improve Canada's organ and tissue donation system, as this motion calls for.
The report calls on the federal government to act in a number of specific ways. First, it should enhance Canadian Blood Services' role as a national coordinating agency for organ donation and transplantation. Second, it should improve public education and awareness. Third, it should create new opportunities for Canadians to register to become donors through access points for federal programs and services. My hon. colleague from Calgary has introduced an excellent bill that would allow our tax returns to be used for that purpose.
Fourth, it should share best practices in organ donation and transplantation. Fifth, it should provide funding for organ donation and transplantation research. Sixth, it should develop a national data collection system to monitor outcomes in organ donation. Finally, as the New Democrats have suggested, it should explore the feasibility of a presumed consent system for organ donation.
Canada's New Democrats were particularly pleased to see that the report endorsed our recommendation calling for a study of presumed consent, or an opt-out system, for organ donation, an idea our party knows will make a huge difference in the number of organs available to save lives.
Unlike Canada's current opt-in system, an opt-out approach would automatically register all citizens for organ donation unless they chose to indicate otherwise. The most important success of this system has been that it has led to organ donation being routinely considered when a patient dies, regardless of the circumstances of death. lt is vital to note that an opt-out organ donation system would not limit any Canadian's freedom to choose not to donate. ln an opt-out system, consent can be withdrawn at any time and families are still responsible for making the final decision with respect to donations.
However, the facts are clear. Countries with opt-out laws have organ donation rates 25% to 30% higher than those in countries requiring explicit consent. Indeed, this approach has helped to make Spain a world leader in organ donation over the last 25 years. ln 2016, Spain recorded an organ donor rate of 43.9 per million people, compared to 20.9 per million people in Canada. That is twice as many. ln Austria, the donor rate quadrupled after instituting opt-out legislation. Similar regulations in Belgium doubled kidney transplants.
By adopting a presumed consent system in Canada, we could increase donation rates, save lives, improve patient outcomes and ultimately realize significant savings in our public health care system. For example, only 16% of the 22,000 Canadians whose kidneys have failed are currently on the transplant wait-list. Without an organ transplant, the only other treatment available to people with kidney failure is dialysis, which has a lower five-year survival rate than organ transplantation, 45% versus 82%, and offers a lower quality of life to patients.
This is not only a moral concern; it is economically imperative. The total annual cost of dialysis ranges from $56,000 to $107,000 per patient, whereas the cost of a transplant is about $66,000 in the first year and about $23,000 in subsequent years. Therefore, the health care system could save up to $84,000 per patient transplanted annually. Of course the main benefit is in the patient's health.
The urgent need for federal action on this file was recently reinforced for me when I spoke with Todd Hauptman, an international public relations consultant based in Vancouver. Todd was diagnosed with Alport syndrome when he was four years old, which meant he would someday need a new kidney. At the age of 16, his condition worsened, forcing him to take medication and change his diet. Then at the age of 20, he started kidney dialysis every night for nine hours a night. A challenging three years on dialysis led to an ever-declining level of health for Todd. His condition got increasingly worse until he had three massive seizures one night in late November 2009. He was in a medically-induced coma for five days and in hospital for 10. The doctors told his family that he may not survive and if he did, a kidney transplant may not be possible. Todd could have died at the age of 23, but he survived thanks to the efforts of exceptional medical staff and a life-saving kidney donation from his friend of 10 years, Tanya Tait.
lt is heartbreaking to realize that some patients will never receive the gift of life when they could. As today's motion reminds us, hundreds of Canadians die every year waiting for an organ that never comes, but could.
For this reason, I wish to conclude my remarks by strongly encouraging all Canadians to register as organ donors and discuss their wishes with their loved ones. One donor can save up to eight lives through organ donation and enhance the lives of up to 74 more through the gift of tissue. There is always potential to be a donor, so no Canadian should let anything stop him or her from registering.
I wish to reiterate the NDP's support for the motion before us today and call upon the Liberal government to turn these words into urgent action to ensure that every Canadian who needs an organ or tissue transplant receives it. No one should ever die because that call did not come in time. The New Democrats will work to help make that a reality.