Mr. Speaker, Rare Disease Day is recognized on February 29, the rarest day of all, as it only happens every four years. This year, we will not be able to do it.
It is a fitting day for rare diseases that affect one in 12 Canadians. With over 6,000 rare diseases identified so far, many more are affected or at risk but remain undiagnosed or unaware that they have one. Of those, 75% are children, and 30% of victims will die before their fifth birthday.
These statistics hit very close to home. My own family is affected by a rare disease called Alport syndrome, a genetic condition that leads to deafness and eventually kidney failure. I know the helplessness and financial hardship that parents can feel when facing an incurable condition affecting their children.
In light of this year's theme, which is research, I want to thank researchers for their efforts toward finding a cure for the rarest of diseases and disorders. Rare disease research contributes to improved diagnostics, treatments, and cures, as well as improved health and social care for patients and their families.
I invite all members to join me in recognizing Rare Disease Day and standing with those affected and their families.