Mr. Speaker, it gets worse. Hundreds of Canadians, including 10-year-old Evan Palmer, in my riding, suffer from spinal muscular atrophy, a life-threatening rare disorder. Bureaucrats have approved Spinraza, but only for the most acute cases, using one clinical trial study of one subgroup.
Most children who suffer from SMA are being denied. Vulnerable Canadians with SMA are at the mercy of bureaucrats and the health minister, who are ignoring the evidence. Will the minister commit to overruling her bureaucrats so that Evan and other SMA patients can get the medicine they need?