Mr. Speaker, Ride For Pitt Hopkins was a great event held in southwestern Ontario on September 9. The event brought awareness to Pitt Hopkins syndrome, a rare children's condition affecting the 18th chromosome. There are 650 cases worldwide, 31 in Canada and 11 in the province of Ontario. It is estimated that there are 30 cases in Ontario right now, but many of those suffering from the disease remain undiagnosed.
That is why the Widows Sons Thames Valley chapter organized this special event. I had the chance to meet Jacob and his mom and dad at this event. His parents shared with me their daily routines, their story and how they work to make Jacob's life better every day. His mother shares his story at “Steps with jacob” on Facebook, sharing the impacts of Pitt Hopkins on Jacob's life, and how he is living with Pitt Hopkins syndrome.
I thank the local Masons, specifically James Rose, for the invite and gear, and for sharing the great work volunteers do in our community.